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About Us
We are a resource for patients and families touched by sarcomas, an uncommon and often misdiagnosed group of bone and soft tissue cancers that strike children and adults alike. We are a nationally-known sarcoma foundation and provide support to patients and loved ones all across the world. Founded in Minnesota in 2001, we have funded over $2 million in innovative, collaborative and high-impact research and education initiatives at top medical research institutions such as Mayo Clinic, the University of Minnesota, and Children’s Hospitals and Clinics of Minnesota.
Programs and Resources Available
Sarcoma Support Team
Connect with a trained volunteer who has been impacted by sarcoma. Our volunteers are survivors and caregivers and available to talk by phone or email, sharing their experience and tips. Connect just once or twice or regularly as suits your needs.
Support Group
Monthly gathering of sarcoma survivors and their caregivers. Individuals share their stories, provide updates on their treatment, and discuss topics related to sarcoma.
Rein in Sarcoma Circle of Support Private Facebook Page
Designed to connect sarcoma patients, survivors, and caregivers to provide support, share knowledge and experience, and raise awareness and advocacy.
Micro-Grants
One time, financial support provided to patients to help with the out-of-pocket costs of treatment.
Tote Bag of Hope
Tote bag filled with comfort items for sarcoma patients.
Survivor Gatherings
Our gatherings are held periodically during the year in-person in Minnesota and some virtually. They are a wonderful opportunity to meet and learn from others who are facing sarcoma. It is also a rare opportunity to get and give support. Our gatherings are low cost or free of cost for sarcoma patients, survivors, and their immediate families; as well as for persons who have lost a family member to sarcoma.
Video Series
Sarcoma-centered, plain-language, videos featuring survivor stories, caregiver interview, sarcoma overview, treatment overview and supportive care.
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