The Meaning of Life for People with Myasthenia Gravis

Wisnu Catur Bayu Pati


Keywords: Psychological Dynamics, the meaningfulness of life, Miyastenia Gravis

Abstract

Being diagnosed with myasthenia gravis is undoubtedly a burden because the sufferers must take medication for life. Furthermore, other burdens are decreased physical ability due to limited activities and routine check-ups that require a lot of money. This study aimed to describe the meaning of life for people with myasthenia gravis. This study used a qualitative research method with a phenomenological approach— the subjects of this study were two people aged 45 and 48. Then, Data collection techniques using in-depth interviews. Data analysis techniques were data collection, data reduction, data presentation, and conclusions. The results showed similarities and differences between subjects, especially regarding social support and ways of making sense of life. This study also found six main themes: (1) physical and psychological conditions, (2) the meaning of life, (3) coping strategies, (4) social support, (5) religious factors, and (6) challenges.


References

Angka Kejadian Myasthenia Gravis. Yayasan Myasthenia Gravis Indonesia. 2021. 

Bubuioc AM, Kudebayeva A, Turuspekova S, Lisnic V, Leone MA. The epidemiology of myasthenia gravis.J Med Life. 2021;14(1):7–16.

Eni, R. (2022). Psikologi Kesehatan (Teori dan Penerapan). Bandung: Media Sains Indonesia.

https://www.aapc.com/codes/icd-10-codes/G70.00

https://yankes.kemkes.go.id/view_artikel/924/myasthenia-gravis

Kaminski, H. (2009). Myasthenia Gravis and Related Disorder . New York: Humana Press.

Khoirudin, A. (2021). manamukan makna hidup : model aplikasi logoterapi pada penderita kejiwaan di PP. Asy-Syifa. Jawa Barat: Jejak Publiser.

Listia, M. (2020). Studi Kasus: Status Pernafasan Pada Pasien Myasthenia Gravis Di Ruang Azalea Rsup Dr. Hasan Sadikin Bandung. Jurnal Perawat Indonesia, 272-284.

Muzakkir. (2018). Hidup sehat dan bahagia dalam prespektif tasawuf. Jakarta: Prenada Media.

Ratnasari, A. N. (2021). Survivour Miyastenia Gravis : Karir, Kehamilan dan Covid . Sukabumi: CV Jejak.

Rizki Nur Amalia, M. R. (2016). Gagal Napas pada Penderita Miastenia Gravis. J Respir Indo, 113-116.