Description of the Parental Acceptance Process of Down Syndrome Children

Penisa Sampe Asang & Maria Nugraheni Mardi Rahayu

Keywords: Children with Down Syndrome, Acceptance of Parents

Abstract

Down syndrome is a disorder that results in the extra of chromosome 21 in children. Parents' acceptance of children with Down syndrome is important to maximize children's growth and development. This study aimed to describe the process of parental acceptance of children with Down syndrome in the Kurra District, South Sulawesi. This study used a qualitative research method with a phenomenological approach, and the participants were two pairs of parents. Data collection was done by interview and observation. The results of this study indicated that every married couple experiences the same acceptance process. The first parents experienced shock, grief, and acceptance. Meanwhile, the second parents experienced a direct acceptance phase. In the parents' acceptance process, four characteristics occurred: the understanding of the strengths and weaknesses of the child, the parents' realistic view of the child, an effort to find solutions to help the child's development, and the fulfillment of love, affection, and protection for the child. Also, this study found that religious values helped participants accept their Down syndrome children so that it could be for further research.

References

Anjarwati, MT, Anita, C. DS, & Pusari, RW (2019). Analysis of the Process of Self-Acceptance in Mothers of Children with Down Syndrome. 2019 PAUD National Seminar, 127–134. http://webcache.googleusercontent.com/search?q=cache:HbU-6ifZ3aUJ:conference.upgris.ac.id/index.php/Snpaud2019/article/download/445/352/1394+&cd=2&hl=en&ct= clnk&gl=id

Castro, JWT, Riddell, H., & Wagner, H. (2017). Perception of Biological Motion Speed in Individuals with Down Syndrome. Journal of Down Syndrome & Chromosome Abnormalities, 03(02), 1–6. https://doi.org/10.4172/2472-1115.1000123

Chaplin, J.P. (1999). Complete Dictionary of Psychology. Jakarta: Raja Grafindo Persada.

C, MND, & Wibhowo, C. (2014). The Process of Father's Acceptance of Children with Down Syndrome. Psychodimensia, 13(2). http://journal.unika.ac.id/index.php/psi/article/view/264

Creswell, John W. (2015). Qualitative Research & Research Design: Choosing Between Five Approaches (3rd Edition). Yogyakarta: Student Libraries

Creswell, John W. (2013). Research Design: Qualitative, Quantitative, and Mixed Approaches (Third Edition). Yogyakarta: Student Libraries

Durand, VM, & Barlow. DH (2007). Digest of Abnormal Psychology (Fourth Edition). Yogyakarta: Student Libraries

Erawati, IL, Sudjarwo, & Sinaga, RM (2016). National Character Education for Children with Special Needs in Inclusive Education. Journal of Social Studies, 65(4), 423–433

Faidah, N., Jalil, A., & Hasan, N. (2019). Santri Motivation for Formal (MTs) and Non-Formal (Diniyah) Education at the Al-Qur'an Islamic Boarding School Nurul Huda, Warrior District, Mojokerto. Vicratina, 4(1), 65–71.

Faradina, N. (2016). The dynamics of acceptance of parents who have children with special needs. Psychoborneo, 4(1), 18–23.

Gallatin, J. (1982). Abnormal Psychology. New York: Macmillan Publishing Co., Inc. Gargiulo, RM (1985). Working With Parents of Exceptional Children: A Guide For Professionals. Boston: Houghton Mifflin Company

Ghoniyah, Z., & Savira, SI (2015). Description of Psychological Well Being in Women Who Have Children with Down Syndrome. Character, 3(2), 1–8. https://ejournal.unesa.ac.id/index.php/character/article/view/10951/10482

Handayani, P., & Pratami, EV (2020). An overview of the process of self-acceptance of mothers with children with Down syndrome. Urban Journal, 12(1), 12–26. http://webcache.googleusercontent.com/search?q=cache:VyKH15YjVxkJ:ejournal.atmajaya.ac.id/index.php/perkotaan/article/view/1231+&cd=2&hl=id&ct=clnk&gl=id&client=firefox- bd

Hildayani, R., & et al. (2010). Handling Children with Disabilities (Children with Special Needs). Jakarta: The Open University.

Hurlock, EB (1978). Child Development Ed. 6 Volume 2 (translation: Tjamdarasa, Meitasari). Jakarta: Erlangga

Hurlock, Elizabeth B. (1980). Developmental Psychology An Approach Throughout the Life Span. Fifth edition. Jakarta: Erlangga

Hurlock, Elizabeth B. (2006). Developmental Psychology An Approach Throughout the Life Span. Fifth Edition. Translated by Istiwidayanti and Soedjarwo. Jakarta: Erlangga

Hurlock, Elizabeth B. (2009). Developmental Psychology: A Development Throughout Life. Jakarta: Erlangga

Jannah, M. (2020). Study Description: The Economy of Parents of Children with Special Needs Against the Education of Children with Special Needs. SPECIAL : Special and Inclusive Education Journal, 1(1), 49–58. https://doi.org/10.36456/special.vol1.no1.a2293

Kandel, Iscak., & Merrick, Joav. (2007). The Child with a Disability: Parental Acceptance, Management and Coping. The Scientific World Journal, 7, 1799-1809. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5901100/

Marlina, I., Zakso, A., & Supriadi, S. (2022). Parents Acceptance of Children with Special Needs in Timpuk Village, Sekadau Hilir District, Sekadau Regency. Equatorial Journal of Education and Learning (JPPK), 11(1), 1–10. https://doi.org/10.26418/jppk.v11i1.51888

Miranda, D. (2013). Coping Strategies and Emotional Exhaustion in Mothers Who Have Children with Special Needs. Journal of Psychoborneo, 1(2), 64–71.

Nevid, JS, Rathus, SA, & Greene, B. (2003). Abnormal Psychology (fifth edition). Jakarta: Erlangga Publisher

Paramita, KP, & Budisetyani, IGAPW (2020). Mother's Acceptance of Down Syndrome Children. Faculty of Psychology State Islamic University of Sultan Syarif Kasim RI a U, (2), 28–36. http://repository.uin-suska.ac.id/11585/1/2010_201030PSI.pdf

Rachmawati, SN, & Masykur, AM (2016). Experiences of Mothers Who Have Down Syndrome Children. Empathy: Journal of Undip Undergraduate Scientific Work, 5(4), 822–830. https://media.neliti.com/media/publications/69342-ID-experience-mother-yang-anak-down-s.pdf

Rahmawati, S. (2017). The effect of religiosity on the self-acceptance of parents of autistic children in XYZ special schools. Journal of ALAZHAR Indonesia humanities series, 4(1).

Rohner, RP, & Khaleque, A. (2002). Parental Acceptance-Rejection and Life Span Development: A Universalist Perspective. Online Readings in Psychology and Culture, 6(1).

Rina, AP (2016). Improving Life Skills in Children with Down Syndrome with Modeling Techniques. Persona, Journal of Indonesian Psychology. 5(3), 215-225.https://adoc.pub/enhancing-life-skills-in-children-down-syndrome-with-techni.html

Sheerer, LL (1963). Model For River Regulation. Journal of the Waterways and Harbors Division, 89(4), 13-28

Sugiyono. (2012). Combination Research Methods (Mixed Methods). Bandung: ALPHABETA, CV

Sugiyono. (2019). Research & Development Methods Research and Development. Bandung: ALPHABETA, CV

Vebrianto, AR, & Satiningsih. (2021). ACCEPTANCE OF MOTHERS WHO HAVE DOWN SYNDROME CHILDREN. Character: Journal of Psychological Research, 8(7), 152–165.

Wibawanto, S. (2018). The Role of the Family in Hedonic Buying Behavior. Journal of Business Focus, 17(2), 1-14

Wijayanti, D. (2015). Subjective well-being and self-acceptance of mothers who have children with Down syndrome. Psychoborneo, 4(1), 120–130. http://ejournal.psikologi.fisip-unmul.ac.id/site/wp-content/uploads/2015/12/ejounal dian wijayanti (12-08-15-06-26-24).pdf