Glad you are stopping by for a while. Look around and hope to see you back frequently.

                                                                

Hello!  You have likely here because you are interested in finding out about a particular disability or have a loved one who has recently been diagnosed.  You probably have more questions than answers.  You may be wondering if your emotions about the diagnosis are normal.  You may be feeling guilty and wondering what you did to make this happen. 

One of the goals of Well Worth the Journey is not only to provide information on a variety of disabilities but also to give you hope for the future.  We have been in the same place you are now.  Everyone's experience is a personal one but we all start with a concern that sometimes leads to a diagnosis.  We have probably had the same questions you are wondering about now.  We have all felt the emotions and wondered if they are okay to feel.  We have worked through the stages of grief and know that they are very important to go through to eventually come to acceptance.  Acceptance about the diagnosis and our children's modified path.

You do not need to go through this alone.  We are here to help when you are ready.

Book Corner


Find books on a variety of disabilities both for parents and children. There are many more on Amazon.com or search you local library.

Autism:

  • A Friend Like Simon – Autism/ASD by Kate Gaynor  and Catriona Sweeney 
  • The Social Skills Picture Book Teaching play, emotion, and communication to children with autism By Jed Baker  
  • Everybody Is Different: A Book for Young People Who Have Brothers or Sisters With Autism By Fiona Bleach  
  • Point to Happy: For Children on the Autism Spectrum By Miriam Smith  
  • The China Doll by D.M. Rosner and Robert Jones 
  • Early Intervention Games: Fun, Joyful Ways to Develop Social and Motor Skills in Children with Autism Spectrum or Sensory Processing Disorders By Barbara Sher

Epilepsy:

  • Mommy, I Feel Funny!  A Child’s Experience with Epilepsy by Danielle M. Rocheford and Chris Herrick
  • Taking Seizure Disorders to School: A Story About Epilepsy by Kim Gosselin and Moss Friedman
  • Epilepsy: Parent and Family Guide by Orrin Devinsky

Traumatic Brain Injury:

  • Elvin The Elephant Who Forgets by: Heather Snyder and Susan Beebe
  • Children with Traumatic Brain Injury: A Parent’s Guide by Lisa Schoenbrodt
  • Living with Brain Injury: A Guide for Families, Second Edition by Richard C. Senelick and Karla Dougherty

Speech and Language Delays

  • Taking Speech Disorders to School by John E. Bryant
  • The Parent’s Guide to Speech and Language Problems by Debbie Feit
  • It Takes Two To Talk: A Practical Guide for Parents of Children With Language Delays by Jan Pepper and Elaine Weitzman
  • The New Language of Toys: Teaching Communication Skills to Children with Special Needs: A Guide of Parents and Teachers by Sue Schwarts and Joan E. Heller Miller
  • The Big Book of Exclamations by Teri K. Peterson

ADD/ADHD:

  • The Gift of ADHD Activity Book: 101 Ways to Turn Your Child's Problems into Strengths by: Lara Honos-Webb
  • ADD & ADHD Answer Book: Professional Answers to 275 of the Top Questions Parents Ask by: Susan Ashley
  • The Disorganized Mind: Coaching Your ADHD Brain to Take Control of Your Time, Tasks, and Talents by: Nancy A. Ratey
  • Taking A.D.D. to School: A School Story About Attention Deficit Disorder And/or Attention Deficit Hyperactivity Disorder by: Kim Gosselin

Siblings of Special Needs Children:



Well Worth the Journey
is an agency in its infancy.  We are working to make it a resource that will be beneficial to all families who are searching for answers and support.  Check back often for new information.  Please let us know how we can best serve your needs during this time in your life.

Well Worth the Journey is operated by parents who don't always have the answers but we usually know where to find the information. We will make sure no question goes unanswered.

If you are a more seasoned parent of a child with a disability, we would love to hear from you.  We are currently looking for families who are interested in sharing their story about a disability so others will benefit.  If you are able to contribute please contact us so we can send you a template, (this will make it easier for you).  Knowledge and a deeper understanding of disabilities really creates an opportunity for all of us to reach our fullest potential. Thank you in advance!
We are currently looking for families to share their experiences for the following titles:
  • I Had a Stroke Before, During or Shortly After Being Born... What is Your Story
  • I Have a Visual Impairment... What is Your Story
  • I Have CP... What is Your Story
  • I Have Down Syndrome... What is Your Story
  • I Have Spina Bifida...What is Your Story
  • I am Deaf and/or am Hard of Hearing... What is Your Story
  • I Have an Auditory Processing Disorder... What is Your Story
  • I Have a Learning Disability... What is Your Story
  • I Have an Intellectual Disability...What is Your Story
  • I Had Infantile Spasms... What is Your Story
  • I Have Prader-Willi Syndrome... What is Your Story
  • I Have Tourette Syndrome... What is Your Story
  • I Have CHARGE Syndrome... What is Your Story
  • I Have ....... What is Your Story

There are many more titles and disabilities we would love to hear about.  We look forward to hearing from you soon.