PAEDIATRIC ONCOLOGY REFERENCE TEAM (PORT)

Enhancing patient outcomes through research and education

Paediatric Oncology Reference Team (PORT) is a team of parents in the UK who have direct experience of children's cancer. Some of our children are post treatment and are well, and some of us are bereaved. We all have experience of working with various cancer related charities and bring a wealth of professional experience to PORT.

PORT is an independent body and has developed autonomously although we enjoy very close links with CRCTU, the Cancer Research UK Manchester Institute, GOSH, Royal Marsden, and other paediatric oncology primary treatment centres. Members of PORT sit on the NCRI Children's Cancer and Leukaemia Clinical Study Group, the NCRI Leukaemia subgroup and CCLG Publications Committee.


PORT's aims

  • Assist medical professionals in the writing and reviewing of information for parents and children (of all ages) – particularly patient information sheets
  • Advise clinicians on the practicality and value of clinical trials and studies
  • Provide generic representation for families of children living with cancer
  • Provide advice to clinicians and others on the reality and practicalities of caring for a chronically ill child
What does PORT do?
PORT's activities in the world of paediatric oncology is varied but the majority of what we do is review paediatric oncology clinical trial documentation for parents and patients. Click here for more information.

What doesn't PORT do?
PORT's remit does not include helping families resolve issues regarding their treatment, doctor or hospital.

Clinical trial documentation reviewed by PORT
Since 2013 PORT has reviewed over 20 paediatric oncology trials. Click here for a complete list.

How to get clinical trial documentation reviewed by PORT?
Click here to find out how to get PORT to review the clinical trial documentation for a paediatric oncology trial.

How to get assistance from PORT?
In addition to reviewing documentation for clinical trials we also give advice on ethical and consent issue and review websites, leaflets, posters. If you are a doctor or researcher and would like assistance or advice from PORT please email 
contactus@port.uk.com.


PORT needs new members
We are looking for parents whose children are no longer on treatment to help review documentation. If you are a parent and you are interested in volunteering your time for PORT please email contactus@port.uk.com. We would love to hear from you.
We are a virtual group and work from home when we have the time. We try and meet up once a year.

How to get in touch with PORT?
Email us atcontactus@port.uk.com.