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September 1st 9 days post op

posted Sep 1, 2010, 10:27 PM by Sean Molby   [ updated Sep 1, 2010, 10:30 PM ]

Much better day today! Thank goodness- fairly uneventful, except for one big thing….(details in a minute)


They pulled Tristan’s drainage tubes out today. These are put in place after each surgery so that any excess fluid has a way to drain out and doesn’t instead back up and put too much pressure on the heart and lungs. Tristan did great through it and seems very happy that they are out.


They also started feeding him today… YIPEEE!! Well sort of, they did. He is only getting 3 ml per hour a far cry from his 130 ml per feed….it takes him a whole hour just to get an ounce. Poor baby, but the point is not to fill his belly it is to make sure he will be okay digesting and that his profusion is sufficient enough to handle actual feeds. They will bump him up gradually over the next few days till he is back up to a regular size feed! He also pooped again today, yep we got to cheer for some poop today J and it was right after they started feeding him so that is a great sign!!


The BIG news is Tristan opened his eyes today for the first time and actually saw us… it was so wonderful to see him again. He is still too groggy to be able to be real happy about being awake-which with everything he is hooked up to that may be a good thing- but we were able to sit and talk to him for quite a while before he tuckered out and went to sleep. I can not begin to tell you how much I miss his smiles and laughs. But him waking up has definitely made my week!


They probably won’t extubate him until Friday, at the earliest. They learned from yesterday and will take it slower this time. The air leak they are waiting for in this new ventilation tube isn’t quite big enough for everyone to feel comfortable with yet but they have ordered another round of steroid treatments to help facilitate the reduction in his swelling. SOOOOO another two days at least before I get to wrap him in my arms again.


So I am extremely excited because I should get to end my week with being able to hold each of my kiddos-cept Caleb cause he is in Florida- something I haven’t got to do for almost two weeks!!


This puts another whole new meaning on THANK GOD IT’S FRIDAY!!!  J  



That pretty much sums it up for today. Thank you all for your thoughts and prayers they are totally appreciated ~ until tomorrow Christy