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late, late, late July 23 :)

posted Jul 23, 2010, 10:01 PM by Sean Molby

Just a quick update.

Tristan continues to do well at home. He is getting so big! He is now 12 pounds 1 ounce and that was at his home visit last Monday so he is actually probably closer to 12 ½ pounds by now.

 

His first Occupational Therapy evaluation visit was last Tuesday. The lady that came was really nice but unfortunately will not be Tristan’s case worker, but she promised to send someone amazing for Tristan. She was however very impressed with how well Tristan is doing. She was astonished by his good coloring and how well he interacts with people.

 

He pulled his NG tube out again earlier this week-the little turkey, that is his 6th time- he was all smiles and giggles with that one. He is soooooo proud of himself when he does that, poor thing hates that feeding tube in his nose. Hopefully only a little while longer and then maybe he will be able to eat on his own orally!!

hint, hint: That is what needs to be in everyone’s prayers now!!!

 

His next cardiology visit is this Wednesday, July 28. We will probably find out an estimated time on his next heart surgery and then will discuss further if the G-tube will really be needed.

 

On a last note, just to give everyone a heads up, since my schedule is beyond busy I have attempted to set up a better, or rather a more organized system of scheduling my time and I figure if all goes well I should be able to get an update up every Friday evening.

So that is my new goal to have some sort of update once a week and it will be on Friday! Unless something major happens that will probably be the only time I will be able to get anything up. Thank you all again for all the prayers and thoughts. 

 

Also, we are having a HUGE fundraising garage sale for Tristan tomorrow-

July 24 from 8-3. Feel free to stop by. Tristan will be there as well as Sean and myself.

The address is (you can google for directions)

 517 NE Emerald Drive  Lees Summit, MO 64064.  (There will be another one at a later date in Lawrence)

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