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April 29th 10:30 PM

posted Apr 29, 2010, 9:16 PM by Sean Molby   [ updated Apr 29, 2010, 9:42 PM ]
Today overall has been a good day for Tristan. He has finally peed out all of his excess fluid. He has been awake and coherent quite a bit today and is in good spirits as he has smiled a lot. For everything he has been through he is such a happy baby; and that is not just me as a mom thinking that, even the nurses comment how much better he is than other babies with his condition. He is just very even tempered and generally content….except when he is poopy, then it is like all hell has broken loose! Grandma always says how funny that is since you would think he would be more pissed at all the tubes and wires coming out from all over his body!
 

 

They have taken him off all his pain meds in the continual drips (so the versed and fentanyl are both gone) and now he only is getting them as needed. So far he hasn’t needed anything since 9 PM but they will give him a PRN dose (that means as needed)  later tonight to make sure he is comfortable through the night. So sweet dreams for Tristan! J

Right now he is talking with Daddy and smiling and wiggling all around. It is a wonderful sight to see.
 

He is pretty much breathing over his ventilator so he is very ready to get it taken out and with as well as he is doing that will hopefully happen tomorrow sometime…fingers crossed! Keep all the prayers coming, you are all amazing and we so much appreciate the support you have given. ~Christy

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