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5/31/2012

posted Jun 1, 2012, 4:44 PM by Sean Molby   [ updated Jun 6, 2012, 5:17 PM ]
Okay, so sorry I am just now getting this out; but we all have been sleeping for the better part of two days, LOL.. since I didnt sleep at all Monday night, and Sean didnt get very much himself, and being so stressed and worried Tuesday, it took its toll.. we got home Tuesday around 4pm and T and I went to bed and slept til 8pm. Got up and scrounged for food then went back to bed around 10pm and slept til 10am.. T ate a HUGE late breakfast, finally got his appetite back, and then went back to sleep for another hour and then stayed up til bedtime...

Tristan Molby is doing great, pretty much back to his normal self, doing everything he used to but just sleeping a little more but I think all the anesthesia has finally worn off! We wont hear back from Dr Kaine til either next week or the week after.

They will present Tristan at the Friday cardiology conference and then discuss the next plan of action. Kaine said the Fontan will either be this summer or they could push it back as late as early next spring; but only because he isnt quite the ideal weight.. the optimal weight is 15 kg (33 pounds) and T is 13.9 kg.. but he still has a couple months of summer to gain. Then they will weigh in the risks and benefits of doing it this summer vs. waiting a few more months...
so for now we wait. But thankfully T is doing phenomonally  well!! He is such a trooper! :) Thank you everyone for all your prayers and support. It means the world!!!
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