Survivor toolkit


 

Where to find useful information?

From a bulletin board

Here are good places to discuss sarcoma issues with other sarcoma patients:


Here are other places just for synovial sarcoma:

Other synovial sarcoma support information

Synovial Sarcoma Survivor Network

From a sarcoma website

Liddy shriver sarcoma initiative

The Sarcoma Share Network

French site:


How to find an orthopeadic surgeon

Musculoskeletal tumor society

How to find a lung surgeon

The cardiothoracic surgery network

Good places to donate


sarcoma foundation of america

Latest clinical trials


Research on sarcoma

Use the following link to create an NCBI account and receive updates on the research you are looking for:

medical publications

Here are websites discussing only sarcoma research:

Connective tissue oncology society

Sarcoma alliance for research through collaboration

American society of clinical oncology

Information Regarding Health Insurance Issues



Support resources for family members





Extending treatment options




Other experiences

With google, it is possible to subscribe to a blog search meaning you can save a keyword search and receive e-mails when somebody talk about that keyword in their blog.

MAny synovial sarcoma patients have/ had websites:

Spencer

Kenny

Cheryl

my blog

Lori

Grumpy fish

Janell

Lisa

Adam

Beau

Reuben 

Bryan

Bethany  





















Other sarcomas:

Eric

The faces of sarcoma

Sharon

Dave