This site represents the collected readings, opinions and philosophies of the author. These are open to change with time.
It is NOT an authoritative site on Down Syndrome. The site is NOT a complete reference source as it is simply those things I have time to investigate and collect. In this sense it is almost random. It is NOT designed to be an educative website.
The "SUPER" in the name of this site refers to many things:
About the author:
Paul Doney is a chiropractor by profession.
Paul can be contacted at: mailto:email@example.com
His motto is: "Embrace the Life you didn't plan."
He is also the husband of Sabine and father to Xervier (pronounced: Zer-vee-air)
Xervier was born on 20 April, 2007 and happens to have Down Syndrome (DS).
I feel for new parents. Whether you have received a diagnosis in utero or post-natally it can take years before you begin to feel "normal" and can look at things dispassionately and with a more global vision. The timing will depend on your personality, family situation, cultural setting and particularly the complexity of medical challenges that your child faces. The more complex the challenges the longer it can take to feel on top of things.
The problem with this is that the most crucial time to make significant interventions to help improve your child's life is in the first few years, especially the first year. However these interventions require changes in thinking and lifestyle as well as getting on top of mountains of information at a time when parents of typical children feel overwhelmed. You need a guide and you need it QUICK. Please look for others who have been through this years ago and have the experience and knowledge to guide you until you can make your own way.
Please take a moment to look at the New Parents page.
As a family we have a number of guiding principles that determine our approach to Xervier's health and upbringing.