Steven's Association Moonrise
 
Steven’s Association Moonrise is a non profit making organisation which has been launched in memory of Steven Keyes. Steven’s Association Moonrise is dedicated to raising money for the purpose of research into and raising awareness about Fanconi anaemia (FA) and its associated problems. 
Funds raised by Steven’s Association Moonrise will be used to support treatment iniatives for Fanconi Anaemia and the associated challenges this condition poses for successful stem cell/bone marrow transplant and cancer prevention and treatment.
 
To find out more about Fanconi anaemia, go to What is Fanconi anaemia.
 
 
 

BRUSSELS 20KM 2018

This year's 20K must have been one of the toughest in a long while! Congratulations to our runners, who, despite the heat and the humidity, managed to complete an arduous race. And many of the times were very respectable indeed - our team ranged between close to 1h 30 and under 2h 30. As usual, the atmosphere was great, with small bands along the route and some welcome showers - not sure whether the benefit of being refreshed by a shower outweighed the soggy shoes, but it all adds to the day.

Fundraising is going well, but still plenty of time to make a contribution and sincere thanks to those who have supported the team - this year we really earned your sponsorship!

Already looking forward to next year - in the meantime, enjoy a few photos of the day





PROJECTS FUNDED

We are delighted to announce that, this April (2018), the Association has allocated a further 15,000 EUROs to support research into Fanconi anaemia.

This brings to 55,000 EURO’s the amount that we have been able to contribute since the Association was established.

Once again, the Board decided to allocate this new grant directly to FARF (the Fanconi Anaemia Research Fund). FARF is the leading worldwide charity for Fanconi anaemia and we have confidence in how they select and vet their research projects.

You may find it interesting to take a look at some of the projects supported by FARF - this list shows the breadth of research undertaken. Much of this research would not take place in the absence of dedicated charities such as FARF and organisations such as Steven's Association Moonrise. Please follow the link: https://fanconi.org/index.php/research/supported_research

Thank you so much for making this donation possible and please continue to support the work of the Association – your support is vital if this much-needed work is to continue.





  
 

  

 




 

 




 

 

 

 


 

 

 

 

 

 

 

 

 
 
 

 

 

 

 

 

 

All About Steve

 

Steven was a young man who always enjoyed his life to the full.  He was in full pursuit of his dreams and ambitions when he was diagnosed with Fanconi anaemia in March 2005.  Despite the severity of this diagnosis, Steven insisted on living his life uninhibited by the threat of this illness.  Steven had a stem cell transplant in June 2007.  Sadly, on the 28th November, 2007, at the age of 24, Steven passed away in hospital in Paris as a result of severe graft versus host disease following his transplant. 
 
To read more, go to All about Steve, or, you can read more of his story at:  http://skeyesat24.blogspot.com
 
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