Charter


The aims of the Association are described in detail in the statutes (see subpage below).  Because Steven’s Association Moonrise ASBL is established in Belgium, these statutes are written in Dutch, with a French translation.  However, the Association’s aims can be summarized as follows:  

 

ü      Activities to support the prevention, treatment and consequences of Fanconi anaemia 
 

ü      Promoting research into Fanconi anaemia

 

ü      Awareness raising and education about Fanconi anaemia

 

ü      Working together with national and international organizations with similar aims

 

ü      The Association will raise funds to support these aims and can also assist other organisations involved in similar activities 

 

The statutes and register of voting members has been lodged with the Ministry of Justice. 

 

The Board of Directors of the Association are:

Mahesh  Bhardwaj
 
Bert Brakels
 
Dr. Marian Doorley
 
Feargal Keyes
 
Matthew Keyes
 
Siôn Millichip
 
Evelyn Power
 
Dr. Aideen Quilty

 

 

Subpages (1): ASBL Statutes