Video Resources

If you are dealing with a new diagnosis, a hundred thousand scary outcomes are running through your mind.  Pause.  Breathe.  Your baby will be just that first...a baby.  Then a toddler.  And then a child.  Not a diagnosis...  Take a few minutes to meet some of the many "Faces of Fetal Surgery for Spina Bifida."  Keep your tissues handy.  These stories are powerful.




Faces of Fetal Surgery for Spina Bifida (2015)

Year of Production: 2015

Running Time: 13:506 min

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After being told our child had a severe birth defect of the spine at our mid pregnancy sonogram, these families chose to undergo a risky open fetal surgery to correct the spine in utero. The hope is to prevent further damage to the spine and complications of the brain. We are the Faces of Fetal Surgery for Spina Bifida.

Faces of Fetal Surgery for Spina Bifida (2014)

Year of Production: 2014

Running Time: 11:53 min

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After being told our child had a severe birth defect of the spine at our mid pregnancy sonogram, these families chose to undergo a risky open fetal surgery to correct the spine in utero. The hope is to prevent further damage to the spine and complications of the brain. We are the Faces of Fetal Surgery for Spina Bifida.

October, Spina Bifida Awareness Month (2014)

Year of production: 2014

Running Time: 03:45 min

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Families of children who underwent fetal surgery for spina bifida submitted their photos to fellow fetal surgery parent Becca Powell to inclusion in this encouraging video set to the song "Home" by Phillip Phillips.

PBS Twice Born: Stories from the Special Delivery Unit

Year of production: 2015

Running Time: 56:59 min

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Part 1
The documentary series about the Children’s Hospital of Philadelphia’s fetal surgery center begins with Dr. Holly Hedrick performing a rare EXIT procedure and attempting to remove a tumor from a fetus still attached to her mother.

 

SEE ALSO:
Twice Born: Stories From The Special Delivery Unit Part 2 
Twice Born: Stories From The Special Delivery Unit Part 3 

Faces of Fetal Surgery for Spina Bifida (2013)

Year of production: 2013

Running Time: 8:55 min

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Meet many families that have received fetal surgery for spina bifida and their journey in photos and video clips.

Fetal Surgery for Spina Bifida

Year of Production: 2013

Running Time: 6:12 min

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Meet Kolby. He underwent a life-changing surgery at Ochsner Medical Center to correct the myelomeningocele birth defect, the most serious form of spina bifida... 12 weeks before he was born. Ochsner's fetal surgery team operated on the one pound, 23-week-old fetus while still in his mother's uterus. When he was born, Kolby weighed 4 pounds, 12 ounces and his physicians are thrilled with his prognosis. 

Fetal Surgery for Repair of Spina Bifida

Year of Production: 2012

Running Time: 3:30 min

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The Vanderbilt Fetal Center offers groundbreaking surgery for repair of spina bifida. A landmark study, co-led by Vanderbilt experts proves that babies who have surgery to repair spina bifida while still in the womb have better outcomes than babies who have surgery after birth. This video tells one family's story.

Birth of a Breakthrough: Fetal Surgery at CHOP

Year of production: 2007

Running Time: 2:30 min

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Receiving a prenatal spina bifida diagnosis is a life-changing and devastating experience for expectant parents. CHOP's Center for Fetal Diagnosis and Treatment team has worked for decades at the forefront of the field to develop a remarkable breakthrough surgery option to treat spina bifida before birth and lessen its lifelong impact. Watch the complete Birth of a Breakthrough spina bifida video series to learn more about how to deal with a spina bifida diagnosis for your unborn child.