In Your State

There is support available for all people with spina bifida and their families.  Although much of this site aims to provide support to those who are considering or having decided to undergo fetal surgery, the resources on this page aim to support the entire SB community by assembling all the spina bifida support organizations and groups we were able to locate in a single list.  PLEASE SHARE with anyone you know who is impacted by spina bifida: people with SB, families, caregivers, friends.  The community makes us all stronger.  


Consider starting with these groups for positive, real-world support from parents and caregivers for those with spina bifida, adults with spina bifida, and medical professionals who work with people who have spina bifida.  Some are public websites.  Some are forums.  Some are closed groups that require identification and a connection to the spina bifida community before joining to safeguard their members.

For more support speific to your state or region, see below.  To visit resources published by fetal surgery centers or their associated universities or hospitals, visit the "Fetal Centers" tab in the navigation ribbon.  If there are no support groups or associations listed in your state, contact the organizations from a neighboring state or the Spina Bifida Association of America for support.

 

Found your state and want to add links to resources that are missing?  Live in another country and would like to do the same?  Click the "Contact" under "About Us" in the navigation ribbon.  

In the United States:

 

Alabama

Alaska

  • There are no state-specific resources at this time. Click "Join the Community" in the navigation ribbon.  See the links under "Additional Support."
Arizona

Arkansas

California

Colorado

Connecticut

  • There are no state-specific resources at this time. Click "Join the Community" in the navigation ribbon.  See the links under "Additional Support."

Delaware

  • There are no state-specific resources at this time. Click "Join the Community" in the navigation ribbon.  See the links under "Additional Support."

Florida

Georgia

Hawaii

  • There are no state-specific resources at this time. Click "Join the Community" in the navigation ribbon.  See the links under "Additional Support."

Idaho

Illinois

Indiana

Iowa

Kansas

Kentucky

Louisiana

Maine

Maryland

Massachusetts

Michigan

Minnesota

Mississippi

Missouri



Montana

Nebraska

Nevada

New Hampshire

New Jersey

New Mexico

  • There are no state-specific resources at this time. Click "Join the Community" in the navigation ribbon.  See the links under "Additional Support."

New York

North Carolina

North Dakota

  • There are no state-specific resources at this time. Click "Join the Community" in the navigation ribbon.  See the links under "Additional Support."

Ohio

Oklahoma

Oregon

Pennsylvania

Rhode Island

  • There are no state-specific resources at this time. Click "Join the Community" in the navigation ribbon.  See the links under "Additional Support."

South Carolina

South Dakota

  • There are no state-specific resources at this time. Click "Join the Community" in the navigation ribbon.  See the links under "Additional Support."

Tennessee

Texas

Utah

Vermont

Virginia

Washington

Washington, D.C.

West Virginia

Wisconsin

Wyoming

  • There are no state-specific resources at this time. Click "Join the Community" in the navigation ribbon.  See the links under "Additional Support."