About Us

You may have arrived at our site because you want to learn more about fetal surgery for spina bifida and if it is right for your baby.  Click RESOURCES in the navigation ribbon to find sites we have found helpful.


We are not compensated in any way to maintain this site.  We just do it because we saw a need.  We wanted parents undergoing fetal surgery for spina bifida to have more supports than we did when we went through.  We wanted to build and grow the community of fetal surgery families so our kids grow up knowing they are not alone in their experience.  We wanted to strengthen our network when we, ourselves, needed to reach out to other parents for support.  


Finally, and most importantly, we wanted to make friends...the kind of friends you can turn to for anything...the kind of friends who understand what you're going through without the backstory...who've been there for the ride and will listen when you need to vent your struggles.

Our fetal surgery for spina bifida community numbers in the hundreds (and growing). For starters, meet just four of our children (at right). We look forward to meeting your family as well!

Follow us on Twitter @SBfetalsurgery

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Visit the "Join the Community" tab in the navigation ribbon to learn more about our Facebook groups.

Meet Kate

She's twelve years old, loves dancing, baseball, soccer, drama, make up, and hair styling.  She is always happy, resilient, and determined.

Date of Fetal Surgery: 2003

Facility: Vanderbilt


Meet Ruth

She's 5 years old, loves dancing, drawing, and wheelchair motocross (WCMX). She continues to show us that she knows no limitations. She's very loving and happy, and is sure to give everyone a hug and a smile.

Date of Fetal Surgery: 2010

Facility: University of California, San Francisco 


Meet Justin

He's strong-willed, creative, funny, active, and makes us laugh every single day.  He loves pickles, blueberries, trucks, and baseball.  He makes friends with everyone he meets.  His laugh is contagious and grabs the attention of perfect strangers.

Date of Fetal Surgery: 2012

Facility: Children's Hospital of Philadelphia



Meet Jackson

He's a laid back fellow who loves music, silly faces, stuffed animals and loads of snuggles. He continues to surpass all expectations and does it with a quiet inner peace that speaks of an old soul. 

Date of Fetal Surgery: 2015

Facility: C. S. Mott Children's, Univerity of Michigan