Newsletter April 2011

posted Apr 3, 2011, 9:11 PM by LaVonne Young

April 19th will be the next meeting at St Mark’s from 7 - 8:30 ( look for signs to the basement). Our May meeting will be May 17th.

The March 25th issue of “All You” had an article on “Eat well, gluten free” with a short paragraph on celiac disease, & 2 recipes - nice to see the awareness in some of the more major magazines.

If you’re looking for gluten free pita bread then check on the site from GFL Foods in New York.  The price is $9 a bag with 6 pitas in a bag plus shipping.    Against the grain rolls can be found at Nature’s Best - I like the pumpernickel the best.  They also carry the Vermont Country rolls from the same company. You can now find Canyon Bakehouse hamburger buns locally too - check New Life also for their new products. Their gluten free products are located throughout the store & in the freezer section - if unsure just ask for help in either store. 

Celiac Disease Foundation will hold their annual Education Conference & Food Faire on Sat May 14th, 2011 The keynote speaker will be Alessio Fasano,MD, a highly recognized celiac disease expert. For more information go to their site

Betty Crocker is now offering a paperback with gluten free recipes, it has 280 recipes & tips, it can be ordered online for $11.50 plus shipping.

CBS has been showing their public service message with Pauley Perrette from the TV show NCIS discussing celiac disease  - a big thanks to CBS & Ms Perrette for helping to raise awareness.

I found Snyder’s gluten free pretzel sticks at the north side Wal-Mart in the snack aisle - look carefully among the choices - it is clearly marked on the front of the package.

Have a wonderful Spring & Easter season.

March 2011 Newsletter

posted Feb 27, 2011, 8:24 PM by LaVonne Young

Celiac Support Group March 2011

Mar 15th will be our annual pizza party: please bring your pizzas already baked, cut & ready to eat, the pizzas can be bought already made (freezer section at one of the stores), ordered & picked up from Pizza Ranch (either location),make your own crust with toppings, buy a pre-made crust & do your own toppings - the options are numerous.......As always soda, bottled water, napkins, plates will be provided. So bring your pizzas & appetites!!

Mark your calendars for April 19th & May 17th - the last meetings before summer vacation begins & the last few meetings for me as a Facilitator for Celiac Disease Foundation. I am happy to report that Faith Neils & LaVonne Young will taking over as the leaders for the support group. They have already been helping me in so many ways for which I am so grateful.  It’s been a great 5 years since I started this group but my personal life does not allow me the time to devote to it that it needs & deserves.

I will be still attending the meetings so I can visit with everyone & continue to learn about Celiac Disease, gluten intolerance, what it means to our lives, our struggles, our triumphs....


May all your food be gluten free

May all your meals be free of cross contamination

May our food start to cost a little less ......

May our “insides” feel better

May we all feel more awake, more energized....

December 2010 Newsletter

posted Dec 9, 2010, 8:14 AM by LaVonne Young

The snow is softly falling & the Christmas feast of gluten free food is calling.  Our next meeting is Dec 21st (I know it’s the week of Christmas) but we needed to keep that date at our meeting place.  This will be our 2nd annual cookie exchange for those that can make it. Last year we had a huge turnout & lots of delicious cookies to choose from. Since my husband will be spending the day at the hospital & I won’t be able to bring him home till around 7-8 p.m. that night, I will not be attending but please feel free to come & enjoy the cookie exchange & meeting.

 Recently, I had the experience of being in the ER of Sanford Hospital at Worthington, Minn after wiping out on black ice.  The nurse did not know what Celiac Disease was but the Dr did so that was encouraging, they treated us to a free meal in the cafeteria after calling down to tell them I needed gluten free.  The food was very good.  Then the hospital paid for a taxi to take us to the Holiday Inn Express plus gave us a gift card for Ground Round (which shared the parking lot with the Holiday Inn).  When we arrived at the restaurant, I asked if they had a Gluten free menu & yes, they did!!  The food was very good and reasonable (we ate there a 2nd night) before we could rent a car to come home.  We were on the way to my brother’s funeral in Montana but never made it, the car was totaled, rolled onto the roof in the ditch - we only had minor injuries.

Our pizza night at the Oostburg Pizza Ranch was a big success, the crusts that were donated by “Still Riding” company were larger than the average pizza crusts and tasted just like the “reg” crusts, the toppings were so good.

Thanks to Lori Veldkamp from the Pizza Ranch & Liz Silverman from “Still Riding” pizza crusts for a great night out.

I’ve heard that Festival Foods  will be going into the old Wal-Mart store on Taylor Dr  - let’s hope that it’s true, how great that would be.  If you liked to call Festivals to tell them how much you’d like them to come to Sheboygan the number is 920-645-6880 (Manitowoc) or call the mayor’s office etc.  The radio has talked about it, but officially it is not in the papers so it must not be a sure deal yet.

Have a Wonderful Holiday Season, eat safely and remember that the Jan meeting will be the Holiday meal at “The Bull” Jan 18th,2011 (details will follow). What I do know is that the cost will be kept at $25 per person, coffee & dessert included.. Drinks are extra, the meal is at 6:30, social hr from 6 -6:30 for those who would like it.

October 2010 Newsletter

posted Oct 5, 2010, 9:41 PM by LaVonne Young

Celiac Support Group October 2010 Newsletter


 A reminder that the annual Free Blood Screening at the University of Chicago Celiac Disease Center is Oct 9th  from 8:30-nooon. Visit or call 773-702-7593 for preregistration.


October is recognized by some organizations as National Celiac Disease Awareness Month, other states & organizations celebrate Celiac Awareness in May -  we can never get enough national attention so lets make use of it by talking to family, co-workers to help with spreading the awareness of celiac disease/gluten intolerance.


For those who read the article in the Sheboygan Press from Monday, Sept 20th which had the headline: “gluttons for gluten-free” then you already know that many in the group were upset by the news that the gluten-free diet was just a fad, the “it” diet soon to be forgotten.  I did write a letter to the editor expressing my view of the article and am waiting to see if they will publish it. We need to stand together to make the public aware of our dietary needs, our health concerns, our absolute need to eat gluten-free.


Port Washington has a restaurant called “The taste of Africa” that is serving all naturally dairy free, gluten-free sugar-free and vegetarian, it is located at 117 Main St - check out their site at for more details. Phone 262-268-1007.


Since our evening at South High was canceled ( due health problems of the teacher), we will be celebrating our 5th anniversary at St Mark’s from 7 -8:30 (come early if you can) with a Pot Luck dinner so bring your main dishes too this time, maybe a tablecloth if you can, sparking grape juice to share, dinner rolls, anything to make it festive.  Hope to see you there.


The November meeting will be Nov 16th but the meeting will be limited to 30 members so we can meet at the Pizza Ranch, Lori Veldkamp has mentioned that the cost will be about $7.00 since we need to provide the crusts, beverages are extra & the salad bar is $4.99.  More details will follow with the Nov newsletter, the time will be 6:30 p.m.


With Halloween coming at the end of the month, please visit several of the sites that list safe gluten-free candies, or call the companies to see if their product is safe.


Have a great fall, enjoy the apple season, the falling leaves & cooler weather.

Celiac Support Group September 2010 Newsletter

posted Sep 8, 2010, 9:10 PM by LaVonne Young

The September  meeting is Tuesday, Sept 21st from 7 - 8:30, we’ll be enjoying “Fair Food”, anything that the County/State Fair would offer but we no longer can eat - Faith promised to make her famous cream puffs, there will be corn dogs, we’re hoping for funnel cakes, anyone want to try & make deep fried veggies?? Or cheese curds?, we’re hoping to see strawberry shortcake, corn on the cob, just think of something to bringJ


There will be a representative from “Tastefully Simple” who will show some gluten free items that they carry - feel free to ask questions - such as : is there a chance of cross contamination? Prices?, how to purchase? etc.   She will have about 15-20 mins after we eat to present her items.


Due to the serious health problems of the teacher from South High School, our Oct meeting with the culinary students making us food will have to be canceled at this time. The teacher needs all of our support at this time - please keep her in your thoughts.

We will have our regular meeting at St Mark’s instead.


The University of Chicago Celiac Disease Center is having it’s annual free blood screening & ask the experts panel on Oct 9, 2010 from 8:30 to 12 noon.  Registration is required, call 773-702-7593 or check out their website


There is a new Gluten Free Store at 20101 Bluemound Road in Brookfield, check out their website , phone 262-785-7020.  I believe they carry Shabtai products which are very good, check


There will be a Gluten Free Expo 2010 in Minocqua - for more information email Julianne Karow  (author of  Celiac Resource Guide) at



If you still have some of the books that are loaned out, please return them at the Sept meeting  or contact me- there are 2 books that I have been missing for quite some time now:  The Gluten -Free Bible  by Jax Lowell   &   Living Gluten -Free  for Dummies                    by Danna Korn - please check to see if you have them, the books are too expensive for me to loan out but not have them returned.


For those of you who have not tried Udi’s bread -what are you waiting for?? It’s possibly the best bread ever and their bagels are outstanding, the pizza crust is very nice too. Now if only they could make GF hard rolls...


Natalie S has agreed to be in charge of ordering Celiac Awareness bracelets, if interested please let her know at the meeting or notify me so I can pass the info on to her. The cost is minimal & a nice way to spread awareness to the community.  What else can we do?? If you have any ideas, please share them with the group at a meeting.

Sheboygan Celiac Support Group March 2010 Newsletter

posted Mar 2, 2010, 7:24 AM by LaVonne Young   [ updated Mar 2, 2010, 7:26 AM ]

Due to the inability of our using the basement meeting room this month for our pizza party, please bring your pizzas already baked & sliced with info on the crust (did you make it? please bring copies of the recipe, buy the pizza already made, or is the crust pre-made with your toppings?).  St Mark’s has graciously allowed us to use their meeting rooms without charge & at times we need to accommodate them.

 Udi’s bread can now be found at New Life Health Store, on 8th & Michigan in Sheboygan,  PigglyWiggly, located at the south side location, & check the Piggly Wiggly in Plymouth.

 Piggly Wiggly in Howards Grove is considering carrying gluten free items, we need to continue requesting the stores where we shop to carry GF items. Woodlake Market in Kohler is now carrying their GF items in one section to make it easier for us to shop. 

 Wood lake Market  is also hosting our April 20th meeting starting at 6:30 (½ hr earlier) till 8 p.m. There will be samples offered by the manufacturers whose products are being sold there at Woodlake.  Laurie Turner from Woodlake has worked hard to put this all together for our April meeting - a big Thank You to her.

 Andi Beschta has started a CDF Connections Support Group in Manitowoc, the meetings will be the 1st Tuesday of every month starting at 6 p.m. at Festival Foods in Manitowoc. The Manitowoc Herald Times ran an article about Andi & her support group in their Feb 22nd issue. Andi will try to still attend some of our meetings & I encourage anyone who can to attend her meetings, while there you can do your shopping at Festival’s at the same time!

 LaVonne & Sean Young have put together a face page for our support group -thank you, thank you, thank you.....and they have also created a free website for our group. If you have an e-mail address then LaVonne has issued you an invite, if you did not receive one, please let me know so that you can have access to the website & face page. Please feel free to add info to either website or let me know what you would like to have on these sites.

 Remember that each of us has to be our own advocate for our needs whether it’s medical, nutrition, the GF foods that we purchase, or emotional (sometimes we can feel isolated) - the group can help with friendship, where to buy the food, what products are better than others, what restaurants are more friendly to Celiacs etc - BUT we do not give medical advice on health issues - you need to talk to your health care providers.  We can tell you what Dr’s we go to, our own personal experiences, etc. We offer SUPPORT!!

 Our newsletter is being sent to dieticians who are located at St Nick’s Hospital , Memorial Hospital, Sheboygan Clinic.  The newsletters are also being sent to Dr. Rana Sokhi (gastro), Dr. David Haller (gastro), Dr. Derse (GP), Dr. Patrick Marsho, Dr. Stillwell. Please send me any Dr’s names & addresses who you would like to receive the newsletter or a dietician who you are seeing & I will make sure that they also receive brochures from Celiac Disease Foundation,  papers that show our favorite restaurants, stores where GF items are sold, & other info.  See you March 16th  at the Pizza Party.

Joleen Delker, CMT is offering to test members using live blood analysis at our March meeting to see if they have leaky gut , candida etc. This test normally is $50.00 but if you schedule to have it done at the meeting it will be $40.00. Joleen’s phone number is 920-312-2064,  please call her for more info etc.

February Meeting Notice

posted Oct 15, 2009, 1:21 PM by Chad Meisinger   [ updated Feb 15, 2010, 8:38 PM by LaVonne Young ]

A reminder that our meeting is Tues night (tomorrow) from 7-8:30, please look for the signs because I believe that we'll be in a classroom instead. 
Some of the things that I want to mention (but I have a problem with my voice again) is :
1. Sean Young will show us how to use our own facepage for the group
2."               " will show us also our webpage
3. April meeting will be at Woodlake Market 1/2 hr earlier (6:30 - 8 p.m.), it will be a fun night.
4. The Aging & Disability Resource Center has invited us to have an informal "table" where we can share info about our group to the public during their open house on March 25th from 3 - 6:30 p.m.   We gladly accepted!!
5. Please take home my "stuff" - like magazines, recipes, etc.  I'm going to throw them away otherwise.
6. The Blue Diamond company has sent us 2 boxes of their crackers to try "Nut thins" 
7.  Cross contamination: a big issue , easy to get caught with stray crumbs of gluten yet so awful a price to pay later.
8. Some of our members have been experiencing health issues lately - you have our get well soon wishes!
9. Our March meeting will be the annual pizza party - bring them on!!
p.s. no twin babies yet but it could be any time.

posted Oct 15, 2009, 1:20 PM by Chad Meisinger   [ updated Feb 16, 2010, 10:37 PM by LaVonne Young ]

posted Oct 15, 2009, 1:20 PM by Chad Meisinger   [ updated Mar 9, 2010, 6:40 AM by LaVonne Young ]

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