April 19th will be the next meeting at St
Mark’s from 7 - 8:30 ( look for signs to the basement). Our May meeting will be
The March 25th issue of “All You” had an
article on “Eat well, gluten free” with a short paragraph on celiac disease,
& 2 recipes - nice to see the awareness in some of the more major
If you’re looking for gluten free pita bread then
check on the site glutenfreepitas.com from GFL Foods in New York. The price is $9 a bag with 6 pitas in a bag
plus shipping. Against the grain
rolls can be found at Nature’s Best - I like the pumpernickel the
best. They also carry the Vermont
Country rolls from the same company. You can now find Canyon Bakehouse
hamburger buns locally too - check New Life also for their new products. Their
gluten free products are located throughout the store & in the freezer
section - if unsure just ask for help in either store.
Celiac Disease Foundation will hold their annual Education Conference & Food
Faire on Sat May 14th, 2011 The keynote speaker will be Alessio
Fasano,MD, a highly recognized celiac disease expert. For more information go
to their site www.celiac.org
Betty Crocker is
now offering a paperback with gluten free recipes, it has 280 recipes &
tips, it can be ordered online for $11.50 plus shipping.
CBS has been showing their public service message with
Pauley Perrette from the TV show NCIS discussing celiac disease - a big thanks to CBS & Ms Perrette for
helping to raise awareness.
I found Snyder’s gluten free pretzel sticks at
the north side Wal-Mart in the snack aisle - look carefully among the choices -
it is clearly marked on the front of the package.
Have a wonderful Spring & Easter season.
Celiac Support Group March 2011
Mar 15th will be our annual pizza party: please
bring your pizzas already baked, cut & ready to eat, the pizzas can be
bought already made (freezer section at one of the stores), ordered &
picked up from Pizza Ranch (either location),make your own crust with toppings,
buy a pre-made crust & do your own toppings - the options are numerous.......As always soda, bottled water, napkins, plates will be
provided. So bring your pizzas & appetites!!
Mark your calendars for April 19th &
May 17th - the last meetings before summer vacation begins & the
last few meetings for me as a Facilitator for Celiac Disease Foundation. I am
happy to report that Faith Neils & LaVonne Young will taking over as the
leaders for the support group. They have already been helping me in so many
ways for which I am so grateful. It’s
been a great 5 years since I started this group but my personal life does not
allow me the time to devote to it that it needs & deserves.
I will be still attending the meetings so I can visit
with everyone & continue to learn about Celiac Disease, gluten intolerance,
what it means to our lives, our struggles, our triumphs....
May all your food be gluten free
May all your meals be free of cross contamination
May our food start to cost a little less ......
May our “insides” feel better
May we all feel more awake, more energized....
The snow is softly
falling & the Christmas feast of gluten free food is calling. Our next meeting is Dec 21st (I
know it’s the week of Christmas) but we needed to keep that date at our meeting
place. This will be our 2nd
annual cookie exchange for those that can make it. Last year we had a huge
turnout & lots of delicious cookies to choose from. Since my husband will
be spending the day at the hospital & I won’t be able to bring him home
till around 7-8 p.m. that night, I will not be attending but please feel free
to come & enjoy the cookie exchange & meeting.
Recently, I had the
experience of being in the ER of Sanford Hospital at Worthington, Minn after
wiping out on black ice. The nurse did
not know what Celiac Disease was but the Dr did so that was encouraging, they treated
us to a free meal in the cafeteria after calling down to tell them I needed
gluten free. The food was very
good. Then the hospital paid for a taxi
to take us to the Holiday Inn Express plus gave us a gift card for Ground Round
(which shared the parking lot with the Holiday Inn). When we arrived at the restaurant, I asked if
they had a Gluten free menu & yes, they did!! The food was very good and reasonable (we ate
there a 2nd night) before we could rent a car to come home. We were on the way to my brother’s funeral in
Montana but never made it, the car was totaled, rolled onto the roof in the
ditch - we only had minor injuries.
Our pizza night at
the Oostburg Pizza Ranch was a big success, the crusts that were donated by “Still
Riding” company were larger than the average pizza crusts and tasted just like
the “reg” crusts, the toppings were so good.
Thanks to Lori
Veldkamp from the Pizza Ranch & Liz Silverman from “Still Riding” pizza
crusts for a great night out.
I’ve heard that Festival
Foods will be going into the old
Wal-Mart store on Taylor Dr - let’s hope
that it’s true, how great that would be.
If you liked to call Festivals to tell them how much you’d like them to
come to Sheboygan the number is 920-645-6880 (Manitowoc) or call the mayor’s
office etc. The radio has talked about
it, but officially it is not in the papers so it must not be a sure deal yet.
Have a Wonderful
Holiday Season, eat safely and remember that the Jan meeting will be the
Holiday meal at “The Bull” Jan 18th,2011 (details will follow). What
I do know is that the cost will be kept at $25 per person, coffee & dessert
included.. Drinks are extra, the meal is at 6:30, social hr from 6 -6:30 for
those who would like it.
Celiac Support Group October 2010 Newsletter
A reminder that
the annual Free Blood Screening at the University of Chicago Celiac Disease
Center is Oct 9th from
8:30-nooon. Visit www.CeliacDisease.net
or call 773-702-7593 for preregistration.
October is recognized by some organizations as
National Celiac Disease Awareness Month, other states & organizations
celebrate Celiac Awareness in May - we
can never get enough national attention so lets make use of it by talking to
family, co-workers to help with spreading the awareness of celiac
For those who read the article in the Sheboygan Press
from Monday, Sept 20th which had the headline: “gluttons for
gluten-free” then you already know that many in the group were upset by the
news that the gluten-free diet was just a fad, the “it” diet soon to be
forgotten. I did write a letter to the
editor expressing my view of the article and am waiting to see if they will
publish it. We need to stand together to make the public aware of our dietary
needs, our health concerns, our absolute need to eat gluten-free.
Port Washington has a restaurant called “The taste of
Africa” that is serving all naturally dairy free, gluten-free sugar-free and
vegetarian, it is located at 117 Main St - check out their site at www.porttasteofafrica.com
for more details. Phone 262-268-1007.
Since our evening at South High was canceled ( due
health problems of the teacher), we will be celebrating our 5th
anniversary at St Mark’s from 7 -8:30 (come early if you can) with a Pot
Luck dinner so bring your main dishes too this time, maybe a tablecloth
if you can, sparking grape juice to share, dinner rolls, anything to make it
festive. Hope to see you there.
The November meeting will be Nov 16th but
the meeting will be limited to 30 members so we can meet at the Pizza Ranch,
Lori Veldkamp has mentioned that the cost will be about $7.00 since we need to
provide the crusts, beverages are extra & the salad bar is $4.99. More details will follow with the Nov
newsletter, the time will be 6:30 p.m.
With Halloween coming at the end of the month, please
visit several of the sites that list safe gluten-free candies, or call the
companies to see if their product is safe.
Have a great fall, enjoy the apple season, the falling
leaves & cooler weather.
The September meeting is Tuesday, Sept 21st
from 7 - 8:30, we’ll be enjoying “Fair Food”, anything that the
County/State Fair would offer but we no longer can eat - Faith promised to make
her famous cream puffs, there will be corn dogs, we’re hoping for funnel cakes,
anyone want to try & make deep fried veggies?? Or cheese curds?, we’re
hoping to see strawberry shortcake, corn on the cob, just think of something to
There will be a
representative from “Tastefully Simple” who will show some gluten free
items that they carry - feel free to ask questions - such as : is there a
chance of cross contamination? Prices?, how to purchase? etc. She will have about 15-20 mins after we eat
to present her items.
Due to the serious health
problems of the teacher from South High School, our Oct meeting with the
culinary students making us food will have to be canceled at this time. The
teacher needs all of our support at this time - please keep her in your
We will have our regular
meeting at St Mark’s instead.
The University of Chicago
Celiac Disease Center is having it’s annual free blood screening & ask
the experts panel on Oct 9, 2010 from 8:30 to 12 noon. Registration is required, call 773-702-7593
or check out their website www.CeliacDisease.net.
There is a new Gluten Free
Store at 20101 Bluemound Road in Brookfield, check out their website http://aglutenfreefrenzy.com , phone
262-785-7020. I believe they carry
Shabtai products which are very good, check www.shabtai.com.
There will be a Gluten Free
Expo 2010 in Minocqua - for more information email Julianne Karow (author of
Celiac Resource Guide) at WisconsinGFexpo@aol.com.
If you still have some of the
books that are loaned out, please return them at the Sept meeting or contact me- there are 2 books that I have
been missing for quite some time now: The
Gluten -Free Bible by Jax
Lowell & Living Gluten -Free for Dummies by Danna Korn -
please check to see if you have them, the books are too expensive for me to
loan out but not have them returned.
For those of you who have not
tried Udi’s bread -what are you waiting for?? It’s possibly the best bread ever
and their bagels are outstanding, the pizza crust is very nice too. Now if only
they could make GF hard rolls...
Natalie S has agreed to be in
charge of ordering Celiac Awareness bracelets, if interested please let her
know at the meeting or notify me so I can pass the info on to her. The cost is
minimal & a nice way to spread awareness to the community. What else can we do?? If you have any ideas,
please share them with the group at a meeting.
Due to the inability of our using the basement meeting room
this month for our pizza party, please bring your pizzas already baked &
sliced with info on the crust (did you make it? please bring copies of the
recipe, buy the pizza already made, or is the crust pre-made with your
toppings?). St Mark’s has graciously
allowed us to use their meeting rooms without charge & at times we need to
Udi’s bread can now be found at New Life Health Store, on 8th
& Michigan in Sheboygan, PigglyWiggly,
located at the south side location, & check the Piggly Wiggly in Plymouth.
Piggly Wiggly in Howards Grove is considering carrying
gluten free items, we need to continue requesting the stores where we shop to
carry GF items. Woodlake Market in Kohler is now carrying their GF items in one
section to make it easier for us to shop.
Wood lake Market
is also hosting our April 20th meeting starting at 6:30 (½ hr
earlier) till 8 p.m. There
will be samples offered by the manufacturers whose products are being sold
there at Woodlake. Laurie Turner from
Woodlake has worked hard to put this all together for our April meeting - a big
Thank You to her.
Andi Beschta has started a CDF Connections Support Group in
Manitowoc, the meetings will be the 1st Tuesday of every month
starting at 6 p.m. at Festival Foods in Manitowoc. The Manitowoc Herald Times
ran an article about Andi & her support group in their Feb 22nd
issue. Andi will try to still attend some of our meetings & I encourage
anyone who can to attend her meetings, while there you can do your shopping at
Festival’s at the same time!
LaVonne & Sean Young have put together a face page for
our support group -thank you, thank you, thank you.....and they have also
created a free website for our group. If you have an e-mail address then
LaVonne has issued you an invite, if you did not receive one, please let me
know so that you can have access to the website & face page. Please feel
free to add info to either website or let me know what you would like to have
on these sites.
Remember that each of us has to be our own advocate for our
needs whether it’s medical, nutrition, the GF foods that we purchase, or
emotional (sometimes we can feel isolated) - the group can help with
friendship, where to buy the food, what products are better than others, what
restaurants are more friendly to Celiacs etc - BUT we do not give medical
advice on health issues - you need to talk to your health care
providers. We can tell you what Dr’s we
go to, our own personal experiences, etc. We offer SUPPORT!!
Our newsletter is being sent to dieticians who are located
at St Nick’s Hospital , Memorial Hospital, Sheboygan Clinic. The newsletters are also being sent to Dr.
Rana Sokhi (gastro), Dr. David Haller (gastro), Dr. Derse (GP), Dr. Patrick
Marsho, Dr. Stillwell. Please
send me any Dr’s names & addresses who you would like to receive the
newsletter or a dietician who you are seeing & I will make sure that they
also receive brochures from Celiac Disease Foundation, papers that show our favorite restaurants,
stores where GF items are sold, & other info. See you March 16th at the Pizza Party.
Joleen Delker, CMT is offering to test members using live
blood analysis at our March meeting to see if they have leaky gut , candida etc.
This test normally is $50.00 but if you schedule to have it done at the meeting
it will be $40.00. Joleen’s phone number is 920-312-2064, please call her for more info etc.
A reminder that our meeting is Tues night
(tomorrow) from 7-8:30, please look for the signs because I believe that we'll
be in a classroom instead.
Some of the things that I want to mention (but I
have a problem with my voice again) is :
1. Sean Young will show us how to use our own
facepage for the group
" will show us also our webpage
3. April meeting will be at Woodlake Market 1/2 hr
earlier (6:30 - 8 p.m.), it will be a fun night.
4. The Aging & Disability Resource Center has
invited us to have an informal "table" where we can share info about our group
to the public during their open house on March 25th from 3 - 6:30
p.m. We gladly accepted!!
5. Please take home my "stuff" - like magazines,
recipes, etc. I'm going to throw them away otherwise.
6. The Blue Diamond company has sent us 2 boxes of
their crackers to try "Nut thins"
7. Cross contamination: a big issue , easy to
get caught with stray crumbs of gluten yet so awful a price to pay
8. Some of our members have been experiencing
health issues lately - you have our get well soon wishes!
9. Our March meeting will be the annual pizza party
- bring them on!!
p.s. no twin babies yet but it could be any