Fact Sheets/Information

Fact Sheets--Click on the links below for information:

1.  Conservatorship

http://scaccess.agis.com/AGModules/LearnAbout2/ArticleView.aspx?mid=3044&tabid=0&aid=12745

 

2. Disabled Adult Child Benefits

http://scaccess.agis.com/AGModules/LearnAbout2/ArticleView.aspx?mid=3044&tabid=0&aid=12748

 

3.  Guardianship

http://scaccess.agis.com/AGModules/LearnAbout2/ArticleView.aspx?mid=3044&tabid=0&aid=12744

 

4.  Letter of Intent

http://scaccess.agis.com/AGModules/LearnAbout2/ArticleView.aspx?mid=3044&tabid=0&aid=12752

 

5.  Medicaid Estate Recovery

http://scaccess.agis.com/AGModules/LearnAbout2/ArticleView.aspx?mid=3044&tabid=0&aid=12682

 

6.  Medicaid Home and Community Based Waivers in SC 

http://scaccess.agis.com/AGModules/LearnAbout2/ArticleView.aspx?mid=3044&tabid=0&aid=12684

 

7.  Medicaid Income Trust "Also Known as Miller Trust"

http://scaccess.agis.com/AGModules/LearnAbout2/ArticleView.aspx?mid=3044&tabid=0&aid=12738

 

8.  Medicaid versus Medicare

 http://scaccess.agis.com/AGModules/LearnAbout2/ArticleView.aspx?mid=3044&tabid=0&aid=12675

 

9.  SC Adult Health Care Consent Act

http://scaccess.agis.com/AGModules/LearnAbout2/ArticleView.aspx?mid=3044&tabid=0&aid=12742

 

10.  Special Needs Trust

http://scaccess.agis.com/AGModules/LearnAbout2/ArticleView.aspx?mid=3044&tabid=0&aid=12751

 

11. SSI & Determining Fair Share of Living Expenses

http://scaccess.agis.com/AGModules/LearnAbout2/ArticleView.aspx?mid=3044&tabid=0&aid=12753

 

12. SSI versus SSDI

http://scaccess.agis.com/AGModules/LearnAbout2/ArticleView.aspx?mid=3044&tabid=0&aid=12747

 

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Supporting People with Disabilities with Grief and Loss--an easy-to-read booklet by HREPSIME GULBENKOGLU 07

http://www.scopevic.org.au/index.php/cms/frontend/resource/id/130

 

  

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 A publication by siblings for siblings to help plan for the unexpected.   

  

 

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REFERENCE POINTS: Resources for Siblings
SIBNET LISTSERV
The SibNet Listserv is an online community for adult siblings around the
world to share information and discuss issues of common interest. You can
now join the SibNet group via Facebook as well as Yahoo.com. to subscribe go
to
http://groups.yahoo.com/subscribe/SibNet

SIBLINGS FACE CHALLENGES
People who have a sibling with a mental health disorder are more likely to
experience episodes of depression at some point in their lives, say
researchers who analyzed four decades of data. Additionally, they found that
people who have a sibling with low IQ are more likely to live near that
brother or sister but to be somewhat emotionally detached from that sibling.
The findings were reported in the Journal of Family Psychology. For more
information go to
http://kc.vanderbilt.edu/kennedy_pdfs/discovery/discovery.pdf


Additional resources available from the Vanderbilt Kennedy Center include:
Tips for Adult Siblings of Individuals with Disabilities
http://kc.vanderbilt.edu/kennedy_pdfs/tipsheets/tipsheet_AdultSiblings.pdf



Tips for Parents of Adolescent & Young Adult Siblings of Individuals with
Disabilities
http://kc.vanderbilt.edu/kennedy_pdfs/tipsheets/tipsheet_Adolescentyoungadul
tsiblings.pdf 

A complete list of their resources can be found at
http://kc.vanderbilt.edu/site/resources/publications/default.aspx

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REFERENCE POINTS is administered by PACER Center
http://www.PACER.org as a
technical assistance activity of the TATRA Project. The TATRA Project is
funded by the Rehabilitation Services Administration.

To SUBSCRIBE to REFERENCE POINTS go to
http://www.pacer.org/tatra/list/index.asp

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Articles of Interest:

Read the article by Janet Thibeau from the Mass Sibling Support Network, The Sibling Experience: What Parents Need to Know

ttp://fcsn.org/newsline/v31n3/siblings.php

 

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 “What Happens When We are Gone”

 “What happens to our special needs family member when the primary caretaker dies?”  This is a question that is discussed in an article by Debra Taylor , “What Happens When We are Gone?”  (from Parenting Special Needs Magazine, Sept/Oct ‘8 Issue, Copyright [2008] by Parenting Special Needs LLC.  http://www.parentingspecialneeds.org)  As the sibling of a brother or sister with special needs you may have to face this situation one day.  To read the article and view the information on special needs planning, go to
http://parentingspecialneeds.org/article&article=8

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 What Siblings Would Like Parents and Service Providers to Know

 "In the United States, there are over six million people who have special health, developmental, and mental health concerns.  Most of these people have typically-developing brothers and sisters.  Brothers and sisters are too important to ignore".............to read more go to

http://www.siblingsupport.org/publications/what-siblings-would-like-parents-and-service-providers-to-know

   The Sibling Support Project.  All rights reserved.

 
About the Sibling Support Project

 

The Sibling Support Project, believing that disabilities, illness, and mental health issues affect the lives of all family members, seeks to increase the peer support and information opportunities for brothers and sisters of people with special needs — and to increase parents’ and providers’ understanding of sibling issues. 

 

Our mission is accomplished by training local service providers on how to create Sibshops (lively community-based for school-age brothers and sisters); hosting workshops, listservs, and websites for young and adult siblings; and increasing parents’ and providers’ awareness of siblings’ unique, life-long, and ever-changing concerns through workshops, websites, and written materials. 

 

Based in Seattle since 1990, the Sibling Support Project is the only national effort dedicated to the interests of over six million brothers and sisters of people with special health, mental health and developmental needs. 

 

For more information about Sibshops, sibling issues, and our workshops, listservs and publications, contact:

 

Sibling Support Project

Don Meyer, Director
6512 23rd Ave NW #213
Seattle, WA 98117
206-297-6368
donmeyer@siblingsupport.org
www.siblingsupport.org

 

       

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 Power Point Presentations
Below are power point presentations on the following:
Life Planning --presented on January 12, 2010 webinar by Mary Ann Perry. 
Supported Community Living --presented on April 27, 2010 webinar by Kristi Hartwell. 
Understanding Causes of Common Dev Disabilities and Birth Defects --presented on July 28, 2010 webinar by Vicki Vincent. 
Planning for a Loved One with Special Needs --presented on September 21, 2010 webinar by Sarah Clingman. 
Benefit Bank of SC --presented on November 17, 2010 webinar by MJ Maurer. 
 
Click on the power point presentations below:
 
Subpages (1): Articles of Interest
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