About Us

What is the purpose of the Adult Sibling Leadership Network?

 Provide opportunities for adult siblings of persons with developmental disabilities, related disabilities, and brain and/or spinal cord injuries to:

  •         Network with each other;
  •         Share experiences, ideas, and concerns;
  •     Gain information about the state’s system of supports and services; and
  •     Receive training on how to effectively advocate on behalf of their brother or sister with a disability.

 Who is the Sibling Network For?

  •  Adult siblings, 21 years of age or older, of persons with developmental disabilities, related disabilities, and brain and/or spinal cord injuries.
  • Anyone else that the individual with a disability considers family in cases where there is no living sibling.
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What are the benefits of joining the Adult Sibling Network?

  •  Monthly webinars/seminars on topics of interest to siblings
  • Statewide conference
  • Adult Sibling Newsletter
  • Adult Sibling Directory
  • Support group
  • Website with links to other states’ Adult Sibling Networks, other SC agencies and partners serving adults with disabilities, and legislative database.
  •    

   

What are the costs for joining the Adult Sibling Leadership Network?

  • There is NO financial cost for joining the network.  There may be some registration fees associated with attending a statewide conference.

 

How can I join the Adult Sibling Leadership Network?

 Complete a membership form or apply on-line on PRO-Parents’ website ( www.proparents.org ) so we can address your interests and needs.

 Disability Definition:

A Developmental disability is a severe, chronic disability of a person which is:

(a)     attributable to a mental or physical impairment or a combination of mental and physical impairments;

(b)     apparent before the person reaches age 22;

(c)     likely to continue indefinitely;

(d)     results in substantial functioning limitations in three or more of the areas of major life activities;

(e)     requires the need for lifelong individually planned and coordinated services.

 brain and spinal cord injury is:

 (a)     attributed to a physical impairment, including brain injury, spinal cord injury or both, or a similar disability;

(b)     regardless of the age of onset;

(c)     not associated with a progressive degenerative illness or dementia, or a neurological disorder related to aging;

(d)     results in substantial functioning limitations in two or more major life activities.

 A Related Disability is a “severe” chronic condition (cerebral palsy, epilepsy, visual/hearing impairment or other condition, other than mental illness) which results in impairment of intellectual functioning or adaptive behavior and requires treatment or services similar to that required of a person with developmental disabilities.





Subpages (1): Steering Committee
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burnettiandr@aol.com,
Feb 1, 2010, 10:06 AM
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