The mission of FPWR is to eliminate the challenges of Prader-Willi syndrome through the advancement of research. FPWR is dedicated to fostering and supporting research that will advance the understanding and treatment of PWS. To date, FPWR has invested over $4,500,000 in funding to leading scientists and research laboratories around the world.
In 2014, FPWR supported 20 cutting edge projects and initiatives. FPWR awarded over $1.2 Million to accelerate high-impact PWS research. Findings from FPWR funded studies were published in 23 scientific publications.
Recently developed drugs present promising new opportunities for the treatment of PWS. Many drugs currently in development have potential to greatly improve aspects of PWS. We have identified a list of candidate drugs for PWS that could help with obesity, behavior and overall health. With conservative estimates suggesting a minimum of $1,000,000 needed to investigate each drug, funding needs for clinical trials are vast. FPWR is working with academic institutions, companies in the pharmaceutical industry and the NIH to leverage our resources and advance trials on candidate drugs as quickly as possible.