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Who is Rumeysa Gelgi?


I was born in Karabük, Turkey in 1997 with 5.9 kg weight and 59 cm height after a 7.5 months of pregnancy stage. I have typical characteristics of Weaver Syndrome; large birth size, accelerated growth, atypical face view (big ears, big tongue, small chin, almond-shaped eyes), tall in height, big hands and feet, hypertonia, umbilical hernia, weak bones and muscles, special skeletal structure and skeletal maturation etc. I'm the first Weaver Syndrome case in Turkey and 27th one worldwide. I was diagnosed in Hacettepe University, Pediatric Endocrinology Clinic. When I was one year old, I had a medical surgery due to ASD (Atrial Septal Defect) and PDA (Patent Ductus Arteriosis) problems from birth. At the age of 2.5, I had Umbilical Hernia surgery and because of weakness of bones, my left leg bone (femur) was broken when I fell down from the seat. After a three week care, it was recovered.

After 9 months physiotherapy, I was able to walk with a walker. I had been under observation of Pediatric Endocrinology Department of Marmara University. I was cured for my accelerated growth since September 8, 2003 till May 10, 2006. In the beginning, I was 1.72 m and 60 kg.

Medical treatment has been successful and I'm not growing anymore. In 2004, I started elementary school and ended in 2011 (in fact home schooling). I skipped 1st grade of elementary school and I'm in high school now.

In December 2013, I had two Scoliosis surgeries in two weeks. In addition, I'm having physiotherapy to strengthen my weak muscles.

Now I'm 17 years old, 2.15 m tall and 80 kg. I'm holding "the world's tallest teen girl" record in Guinness World Records.

I love sight-seeing and exploring new places, shopping, computers and internet, reading books (especially detective and crime novels).