CRPS

In my practice role (2006-2013) at the Royal National Hospital for Rheumatic Diseases, I worked with people who were learning to live with Complex Regional Pain Syndrome (CRPS). This is a chronic pain condition characterized by excessive pain that is disproportionate to the initial injury. Chronic CRPS can be both distressing and debilitating and has a considerable impact on the lives of both the person with CRPS and those closest to them. I have developed a variety of resources that might be helpful including leaflets and a book.


Publications 
Singing Dragon: London. (ISBN: 978-1-84819-240-9)

Gavin, J., Rodham, K., Coulson, N. & Watts, L. (2014) Meeting the support needs of patients with Complex Regional Pain Syndrome through innovative use of wiki technology: A mixed methods study. NIHR. DOI 10.3310/hsdr02240.

We collaborated with people living with CRPS the develop three leaflets covering: What people with CRPS want:
Friends & family,
Employers and
Health Professionals (HCPs)
to know.
Downloadable LEAFLETS (in pdf format at the bottomg of the page. NB you will need Adobe Acrobat): 
 



Useful Sites
Royal National Hospital for Rheumatic Diseases - a national centre for the management of CRPS: Click here
 
CRPS UK - a patient-led organisation for people with CRPS: click here

CRPS Community - a website set up by a person with CRPS for people with CRPS: click here

CRPS Guidelines can be accessed via the Royal College of Physicians website: click here

CRPS UK Network - a collaboration between a number of UK NHS trusts and academic institutions with an interest in CRPS   click here
Comments