About Cystic Fibrosis


What Is Cystic Fibrosis?

Cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States (70,000 worldwide). A defective gene and its protein product cause the body to produce unusually thick, sticky mucus that:
  • clogs the lungs and leads to life-threatening lung infections; and
  • obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food.
In the 1950s, few children with cystic fibrosis lived to attend elementary school. Today, advances in research and medical treatments have further enhanced and extended life for children and adults with CF. Many people with the disease can now expect to live into their 30s, 40s and beyond.                        

Symptoms of Cystic Fibrosis
People with CF can have a variety of symptoms, including:
  • very salty-tasting skin;
  • persistent coughing, at times with phlegm;
  • frequent lung infections;
  • wheezing or shortness of breath;
  • poor growth/weight gain in spite of a good appetite; and
  • frequent greasy, bulky stools or difficulty in bowel movements.
Statistics
About 1,000 new cases of cystic fibrosis are diagnosed each year.
More than 70% of patients are diagnosed by age two.
More than 45% of the CF patient population is age 18 or older.
The predicted median age of survival for a person with CF is in the late-30s.

The Cystic Fibrosis Foundation
Since 1955, the Cystic Fibrosis Foundation has been the driving force behind the pursuit of a cure. Thanks to the dedication and financial backing of our supporters--patients, families and friends, clinicians, researchers, volunteers, individual donors, corporations and staff, we are making a difference.
Learn more about Testing for Cystic Fibrosis.
Explore all aspects of Living with CF at every stage of life.
See what Treatments are available and what’s in development.

Cystic Fibrosis Foundation’s Infection Prevention and Control Policy
Effective March 11, 2013

INDOOR EVENTS WITH AN OUTDOOR COMPONENT

Because of risks to people with cystic fibrosis (CF), only one person with CF may be invited to participate in the indoor portion of the event. During the outdoor portion, people with CF should keep at least 6 feet away from others with CF. Also, individuals who have ever had a confirmed positive sputum culture for Burkholderia cepacia (B. cepacia) complex shall not attend any Foundation events/meetings. These requirements are because CF germs can be passed between individuals who have CF. Some germs in a person with CF can cause serious respiratory illness and, in some patients, may lead to death. CF germs are not a risk for otherwise healthy individuals.

Despite this policy, individuals with CF might choose to attend events without informing the CF Foundation or without the Foundation’s knowledge. If so, they do so at their own risk. The Foundation accepts no responsibility for any risk to health involved in attendance, or in any social contact between persons with CF. For more information, please visit www.cff.org.


OUTDOOR EVENTS/GATHERINGS

Because of risks to people with cystic fibrosis (CF), individuals who have ever had a confirmed positive sputum culture for Burkholderia cepacia (B. cepacia) complex shall not attend any Foundation events. These requirements are because CF germs can be passed between individuals who have CF. B. cepacia in a person with CF can cause serious respiratory illness and, in some patients, may lead to death. CF germs are not a risk for otherwise healthy individuals. At any outdoor event, people with CF should keep at least 6 feet away from others with CF.

Despite this policy, individuals with CF might choose to attend events without informing the CF Foundation or without the Foundation’s knowledge. If so, they do so at their own risk. The Foundation accepts no responsibility for any risk to health involved in attendance, or in any social contact between persons with CF. For more information, please visit www.cff.org.