This site is created to help new preemie moms (and Dads). We hope to offer guidance, hope, and advice at a time of fear and uncertainty. My son, Noah, was born at 26 weeks weighing just 2lbs 1oz. He spent 11 weeks in the NICU. He is now a happy, healthy three year old! If you have any information to add to this site please feel free contact me .
- Get a few primary nurses (nurses assigned to your baby whenever they are working).
-Ask questions as many times as you need to so that you understand what is happening with your baby.
- Be an advocate for your baby. If something doesn't seem right, speak up.
- Take every day one at a time. There will be good and bad days, that's why it's called the NICU rollercoaster.
- Take lots of pictures. Take weekly pictures next to a marker, stuffed toy, etc to measure growth.
- Keep a journal or calendar, refer back to the good days often.
- Celebrate little milestones.
- Ask what you can do to help your baby. Once they are stable you can often change diapers, take temps, etc.
- Rest and take the time you need to take care of yourself.
- Attend NICU support groups if available.
- Ask for help from others if you need it.
- Start a blog to keep friends and family members updated, and to give yourself something to look back on when your baby is older.
-Don't watch the monitors, watch your child. It helps you to enjoy your baby more.
Terms used in the NICU :
Breastfeeding and Pumping -
Preemie Message Board:
A comprehensive Web site that provides information for parents after the NICU: : http://www.childrensdisabilities.info/
Information and support regarding reflux:
Information and resources regarding retinopathy of prematurity (ROP):
Letter explaining RSV to friends and family:
Informative preemie blog :
Guide for gross and fine motor skills and development games:
Isabell's Gift, a non-profit organization dedicated to supporting families with children in the NICU:
Preemie baby book template to commemorate your child's time in the NICU:
Request "Please Wash Your Hands Before Touching Mine" stroller sign:
Early daysPreemies: The Guide for Parents of Premature Babies
by Dana Wechsler Linden, Emma Trenti Paroli, and Mia Wechsler Doron M.D. (2000)
Handbook of neonatal intensive care
Baby E.R. : The heroic doctors and nurses who perform medicine's tiniest miracles
Kangaroo care: the best you can do to help your preterm infant
Emotions and psychology
Parenting your premature baby and child : the emotional journey
Parents of premature infants: their emotional world
Learning to love: the developing relationships between mother, father and baby during the first year
Before their time: lessons in living from those born too soon
Empty cradle, broken heart: surviving the death of your baby
The fate of early memories: developmental science and the retention of childhood experiences
Development of premature babies
Developmental and Behavioral Characteristics of Preterm Infants
Mothering multiples: breastfeeding and caring for twins or more
Breastfeeding the infant with special needs
Stories by parents
Laurel's primer for parents of micro-preemies
Living miracles: stories of hope from parents of premature babies
peace of God - a mother's journal of God's grace for her and her family
during a high-risk pregnancy and the premature birth of their daughter
You are not alone - 20 stories of hope, heroism, heartache and healing told by the parents of children treated in the NICU
Caring for your premature baby : a complete resource for parents
In time and with love : caring for the special needs baby
Sleep better! A guide to improving sleep for children with special needs
Communication and speech development
How to talk to your baby: a guide to maximising your child's language and learning skills
The new language of toys : teaching communication skills to children with special needs: a guide for parents and teachers
Baby signs : how to talk with your baby before your baby can talk
Long-term medical problems
Hydrocephalus : a guide for patients, families and friends
ADHD in the young child : driven to re-direction : a book for parents and teachers
Behavioral intervention for young children with autism : a manual for parents and professionals
Pediatric tracheostomy home care guide
That's my child : strategies for parents of children with disabilities
by Patricia Vadasy and Donald Joseph Meyer (November 1996)
*Each NICU has different requirements about when babies can be dressed. Please check with your NICU before buying micro-preemie clothes.
Babies R Us
Provides coupons for Similac NeoSure (formula for preemies)
NeoSure sold at Wal-Mart, Babies R Us and CVS
Pamper Swaddler in preemie size sold at Babies R Us