Project Home

Note: this demo has no audio - don't worry about adjusting your settings.

Demo: Finding Clinical Trials with your Blue Button+ profile.


Developing new treatments for diseases depends on clinical research studies and 57 percent of Americans say they would be interested in participating in a clinical trial. However, almost half of all studies never reach their recruitment targets. In order to connect patients and researchers, Novartis, Pfizer and Eli Lilly and Company, are partnering in the U.S. to provide a new platform to improve access to information about clinical trials. The platform will enhance clinicaltrials.gov and will provide more detailed and patient-friendly information about the trials, including a machine readable “target health profile” to improve the ability of healthcare software to match individual health profiles to applicable clinical trials. As part of the project, patients can search for trials using their own Blue Button data. To preserve data privacy, de-identified Blue Button data, used only as an “index to search,” will not be stored anywhere outside of the patient’s application. The platform launch is planned for early 2014 with a starting database of about 50 clinical research studies from the participating companies. The platform will be open on both ends: other sponsors of clinical research studies may upload information about their trials, while software companies develop tools to deliver this information to interested patients.

Messages

  • Demo of Prototype available. "It works!". We have successfully developed and tested the proof of concept of the platform.  In this demo, you can see how...a patient creates an account on a patient ...
    Posted Jun 25, 2014, 10:15 AM by Joris Van Dam
  • Great Feedback at Partnerships in Clinical Trials Tom Krohn, David Leventhal and I had the great pleasure to present our project at the Partnerships in Clinical Trials Conference last week.I believe our presentation was very well ...
    Posted Apr 7, 2014, 10:07 AM by Joris Van Dam
  • Project featured at OSTP and NITRD conference  The project was featured at the recent conference on "Data to Knowledge to Action - Building new partnerships", which was co-sponsored by the White House Office of Science and Technology ...
    Posted Dec 8, 2013, 1:53 PM by Joris Van Dam
  • Kick off Meeting Great kick off meeting Sept 16th at the Lilly Clinical Open Innovation offices in Indianapolis (http://portal.lillycoi.com/)Thanks for being such fantastic hosts guys! Best place to kick ...
    Posted Dec 8, 2013, 11:27 AM by Joris Van Dam
Showing posts 1 - 4 of 4. View more »