Mesothelioma Webinar Support Group
Care Support Coordinator: Jennifer Paul
Not just online support and information, but featuring a weekly live interactive support group for the emotional traumas of the disease. Due to the rarity of the cancer, in person support groups are scarce. Online group support increases the opportunities to reach individuals and families all over the nation who are effected, and can be helpful for those who are home-bound or hospital bound, have limited free time to attend meetings, don’t have access to a nearby group, etc. It is difficult to remember to care for oneself while trying to manage the constant appointments, bills, and worries. Even when the medical and legal aspects are being appropriately handled, the disease results in emotional consequences – MesoRFA understands this, and cares about enhancing the mental health and quality of life of those affected.
Facilitator knowledgeable about the disease and its effects, and has been intimately connected with the Mesothelioma Research Foundation of America (supports medical research for finding a cure) for years – access to medical and legal experts and co founders of MRFA, Dr. Gill and attorney Jerry Neil Paul
Facilitator trained specifically to provide support to individuals, couples, families, groups; Masters in Clinical Psychology with an emphasis in marriage and family therapy with years of clinical experience; not currently licensed due to pursuit of doctoral degree in psychology
| How to begin?
The main live online group is the starting point for getting support and information resources.
Depending on a particular individual’s struggle, the facilitator will assign the person to a relevant subgroup to provide more focused support around specific issues of dealing with the mesothelioma disease or caring for a loved one with the disease.
PURPOSE & CONTENT: A place for people to give and receive both emotional and practical support and interaction (share medical information, treatments, clinical trials, most cutting edge research findings, normalize feelings, let off steam, educate others, public policy information, legal resources)
STRUCTURE: Regardless of whether one was just diagnosed with Mesothelioma, or has been dealing with it’s effects for years, this group provides support, information, and resources delivered through the expert moderator as well as peers who can relate intimately with the experience.
Caregivers and Family Members