April 11-12 in Hershey, PA.
Please share with Health Care Professionals and Students so that we may raise awareness
through education on diagnosis and treatment of Tick Borne Disease!
Health Care Professionals Register NOW for the Conference and secure your spot!
Distinguished Speakers Include:
Dr. Joseph Burrascano Jr.
It is with great sadness that I pass this news along. Rep. Dick Hess died Friday, 9/6 after complications from recent leg surgery.
As you all know, Rep. Hess has been a very strong and passionate advocate for the Tickborne disease cause, motivated by a close family member's very serious case. He was holding strong to advocate for insurance coverage for patients, and we are in the middle of reviewing that revised legislation that would have be introduced later in September.
See below for information about Rep. Hess's funeral, and address to send condolences. He was a tremendous advocate for our community and cause and I encourage you to send a personal condolence to his office to pass on to his family.
Thank you all - Julia
This is the address –
Representative Dick L. Hess
133 S Richard St
Bedford PA 15522-1343
This is the link to the funeral home obituary. You would also be able to send condolences online as well.
Please SHARE these stories to
raise awareness about the real life implications of
LYME and TBDs!
Thank you to Doug and Linda for sharing your stories to help others!
Borrelia Culture from Advanced Labs published in peer reviewed journal! read article: http://www.medsci.org/v10p0362.htm
Sapi E, Pabbati N, Datar A, Davies EM, Rattelle A, Kuo BA. Improved Culture Conditions for the Growth and Detection of Borrelia from Human Serum. Int J Med Sci2013; 10(4):362-376. doi:10.7150/ijms.5698. Available from http://www.medsci.org/v10p0362.htm
LYME ACTION PA
is proud to share
LYME YOUTH ACTION VIDEOS- 2012!
Senator Greenleaf and Representative Harper
Speaking in Support of Lyme Disease Legislation in PA
Please view, and PLEASE SHARE!
House Subcommittee met on LYME Disease 7/17/12
The following link provides a full summary of the hearing, a link to the video archive,
and a call to action! Please read and act now.
Let's make 2012 the year things change for the better!
Lyme Light Fashion Show Was a Huge Success! More to Come!
View Lyme Light Fashion Show 2011~ CLICK HERE!
URGENT ACTION NEEDED!
PA House Bill #272 was laid on the table in the house this week and will be brought out for a vote soon (most likely March). This is the time to CALL YOUR HOUSE REPRESENTATIVE, and follow-up with a SHORT personalized email.
House Bill 272 has made that trip to the HOUSE FLOOR!
Vote Expected in
CALL YOUR PA STATE REPRESENTATIVES
TELL THEM TO
VOTE YES on House Bill 272!!!
CLICK HERE to see the page on HB 272, and
to Find your State Representative!
This bill has included in it 2 very important parts: SEE CURRENT LANGUAGE OF BILL at http://e-lobbyist.com/gaits/view/245528
We NEED A VERY STRONG VOTE IN THE HOUSE TO SHAKE UP THE SENATE.
1) call your representative and tell them this is the time - VOTE YES.
FIND YOUR REPRESENTATIVE HERE:
TEMPLATE EMAIL CLICK HERE -- please make this YOUR OWN email -- representatives are much more responsive to personal emails - not so much to "form" letters. Tell your story and ASK them to vote YES. Don't give up until you get an answer from them.
2) call and email The Speaker of the House (he is the one who will decide when to bring it out for a vote: Rep. Sam Smith from Punxsutawney, Telephone: (814) 938-4225, E-mail: firstname.lastname@example.org
3) Post on LymeActionPA's Facebook page: we want to hear from you when you contact them- tell us all how it goes, what their answer is. Demand a response - they represent you! http://www.facebook.com/pages/Lyme-Action-PA/397803743661.
THANK YOU! WHEN THIS IS PASSED - IT GOES TO THE SENATE - THE STRONGER THE HOUSE VOTE THE MORE PRESSURE ON THE SENATE! TOGETHER LET'S GET THIS PASSED!!!!
UNDER OUR SKIN will be showing at the MAJESTIC in GETTYSBURG PA, May 14. Click Here.
REMOVE OUTDATED IDSA GUIDELINES FROM NGC!
Treatment guidelines are tremendously important in determining your medical treatment options. All important treatment guidelines are listed by the National Guidelines Clearinghouse (NGC). NGC requires that guidelines be updated every 5 years.
IDSA has not revised its guidelines for more than 5 years. Nevertheless, the NGC
recently permitted them to continue listing the guidelines – without updating
them – based on the IDSA’s claim that the antitrust review process fulfilled NGC
BACKGROUND: LYME POLICYWONK: http://www.lymedisease.org/news/lymepolicywonk/898.html
Please sign onto the petition at the link below:http://www.lymedisease.org/petitionscript/index.php
Join us in asking PA Congressmen and Congresswomen to join their fellow Congressmen Wolf, Gibson, and Smith in calling on the NGC (National Guidelines Clearing House) to remove the out of date IDSA Guidelines!
On January 17, 2012, Congressmen Smith, Wolf, and Gibson called on the National Guidelines Clearinghouse (NGC) to remove the IDSA’s outdated Lyme guidelines. We applaud them! But, this, of course, is the middle of the story not the beginning, so let’s go back. read full story at http://www.lymedisease.org/news/lymepolicywonk/898.html
A sample letter: Thank you for your service to the commonwealth. I am writing to ask you to join your fellow congressmen Smith, Wolf, and Gibson and call on the NGC (National Guidelines Clearing House) to remove the outdated IDSA guidelines for Lyme Disease. Lyme Disease is a growing problem in our state, and the IDSA guidelines are not up to date and are therefore grossly inaccurate. For Background on WHY this is so important please read: http://www.lymedisease.org/news/lymepolicywonk/898.html Thank you giving this the attention it deserves.
Tutoring Scholarship Available for
Children and Youth with Lyme!
is pleased to announce a new scholarship fund for
Lyme kids in PA:
"The Alan B. Miller Lyme Scholarships":
These scholarships have been funded through generous donations to the Green Valley Academy by Dr. Alan B. Miller initially funding 5 scholarships. 3 of these have already been allocated to children with Lyme, and 2 remain. But don't despair, the fund will be renewed if there is a demonstrated need. So get your applications in, and pass on this email.
CLICK HERE for the application. It is short and simple - there are no financial need requirements. The goal is to help kids with Lyme, period. Green Valley Academy (http://www.greenvalleyacademy.org/) is located in Paoli and has a Day Program as well as tutoring services for children with health or other special learning needs.
Please let me know ASAP if you are interested in a scholarship for your child and get your application in. The application is attached, along with an information sheet.
We thank the Founder and Director of the school, Mimi Green, who has had Lyme disease, and Dr. Alan B. Miller for their generous contribution and commitment to help kids with Lyme Disease.
I look forward to hearing back from you as soon as possible,
Julia Wagner, MBA
President of MontCoLyme (Montgomery County (PA) Lyme Information and Support Group)MontCoLyme@aol.com
MontCoLyme - 211 Main Street, North Wales, PA 19454
888-661-LYME (888-661-5963) (x102, Julia)
The Lyme Test Access Program (Lyme-TAP) is a nationwide patient assistance program
to provide assistance for initial Lyme-related lab tests to patients who demonstrate true financial need.
For more information and to learn how to apply visit their website: http://www.lymetap.com/
The International Lyme and Associated Diseases Society is running a powerful public awareness campaign to create greater understanding of the dangers of Lyme Disease, thanks to a special donation of advertising time on the CBS Jumbo Tron. The all-type animation focuses on the statistical fact that Lyme disease is growing faster than AIDS and sends viewers to the ILADS.ORG website for more information. View the complete message at: http://www.ilads.org/media/ilads_jumbotron.php
Additionally below are links to webcasts from the ILADS conference held in Toronto in FALL 2010.
Of Special Note: Dr. Marcus Conant spoke for the 2nd time at the conference -- his tremendous efforts to put AIDS on the map in America were featured in the award winning film "And the Band Goes On..." on the AIDS epidemic and all it took to get the medical establishment to pay attention to AIDS. Dr. Conant, in his "retirement" has gotten very interested and involved in chronic tick-borne diseases. I met him personally at the Columbia University conference, and he is an incredibly humble and heroic individual, with tremendous compassion and a willingness to act when others do not. http://www.ilads.org/media/videos/videos_conant.php
DR. JOSEPH J. BURRASCANO: Borrelia Infections - diagnosis and treatment
DR. MARCUS CONANT: Cutaneous Mimics, Don't Be Fooled
DR. CHRISTINE GREEN: Coinfections And The Opportunistic Groupies
DR. JOSEPH JEMSEK: Advanced Techniques in Physical Diagnosis of Lyme Borreliosis Complex
DR. RICHARD HOROWITZ: Lyme Disease & Babesiosis: Updates on Diagnosis and Treatment 2011
DR. CHARLES RAY JONES: Pregnancy and Tick-borne Diseases: Gestational Lyme
DR. STEVEN J. BOCK: Overview of Integrative Patient Care in Tick-Borne Diseases
"Eat Crow With Lyme".
Read his story in the Home School Court Report
Click HERE for the story!
At this time our TOP PRIORITY is to support the
"Lyme andRelated Tick-Borne Disease Education, Prevention and Treatment Act" also known as PA SB 210
Please contact your SENATOR and ask for his or her vote to pass SB 210 in PA.
You, as their constituents, make a big difference in their awareness of the issues. Remember, many are NEW to the Senate and may be fully unaware of the bill or the magnitude of the problem.
Contact your REPRESENTATIVE and ask
for a meeting... again, many are not aware of the crisis in our state. Please
share with them. They can't help us if they don't know.
For a sample template letter that you can personalize CLICK HERE.
For LINKS to all state REPRESENTATIVES and SENATORS by county CLICK HERE.
CLICK HERE for a link to the video webcast.
To view the Public Hearing Agenda CLICK HERE. The video and audio links are also found on the page.
"LymeAction PA is led by a coalition of PA Lyme Advocacy and Support Groups, chaired by Julia Wagner, MontCoLyme, and including LDA-Southeastern PA, York Lyme Disease Support Group, The Lyme Society, The PA Farm Bureau, Chester/Delaware Counties, and The National Lyme Disease Association. CLICK HERE for information identifying more PA groups actively supporting this bill and effort.
Contact Us: Lyme Action PA EMAIL: email@example.com
Julia Wagner at Montogmery County Lyme Disease Support Group: MontCoLyme@aol.com
MontCoLyme Website: www.montcolyme.org
If you would like to receive updates from Lyme Action Pa please email us at firstname.lastname@example.org. Please put "add me to the list" in the subject line, and your contact information in the message: Your name (required); Your address (optional); Your telephone number (optional).