Resources and Links

The internet offers a wealth of websites to educate you about RSD/CRPS and FM.  Listed below are websites that provide education about RSD/CRPS & FM as well as supportive advice for living with chronic pain and its associated medical problems.  Links to external sites should not be construed as a formal endorsement, approval of information, or as a specific recommendation from the Lehigh Valley RSD/CRPS Support Group.  Sites are listed as a basic service to individuals searching for general information about RSD/CRPS & FM to help deal with chronic pain.

At the more general websites for chronic pain, access information specific to RSD/CRPS & FM by using the search option with "RSD" and/or "Reflex Sympathetic Dystrophy," "CRPS" and/or "Complex Regional Pain Syndrome," or the "RSD/CRPS" combination. You may also try the Fibromyalgia or FM or PTFM search as well. Try different options as not all sites use the same terminology; some sites prefer just using "RSD" or "CRPS" while others will use both terms.  Thus, search parameters should take this situation into account. 

American Pain Society--
American RSDHope--
For Grace--Changing the World of RSD--
International Association for the Study of Pain (IASP)--
International Research Foundation for RSD/CRPS--
Mayo Clinic Information on RSD--
National Institute of Neurological Disorders and Stroke (NINDS)--
National Organization of Rare Diseases (NORD)--
                             (or )  
Rare Diseases Search Engine--
Trigeminal Neuralgia Association--
RSDSA National Organization--
RSD/CRPS Treatment Center and Research Institute--
WebMD Information on RSD/CRPS-- 
Worldwide Congress on Pain--

Sorry to report that as of 1/2015 the following websites are no longer in service:
-American Pain Foundation (Dissolved 2012)
-National Pain Foundation (Dissolved 2012)

Updated 1/10/2015