Resources and Links

The internet offers a wealth of websites to educate you about RSD/CRPS and FM.  Listed below are websites that provide education about RSD/CRPS & FM as well as supportive advice for living with chronic pain and its associated medical problems.  Links to external sites should not be construed as a formal endorsement, approval of information, or as a specific recommendation from the Lehigh Valley RSD/CRPS Support Group.  Sites are listed as a basic service to individuals searching for general information about RSD/CRPS & FM to help deal with chronic pain.

At the more general websites for chronic pain, access information specific to RSD/CRPS & FM by using the search option with "RSD" and/or "Reflex Sympathetic Dystrophy," "CRPS" and/or "Complex Regional Pain Syndrome," or the "RSD/CRPS" combination. You may also try the Fibromyalgia or FM or PTFM search as well. Try different options as not all sites use the same terminology; some sites prefer just using "RSD" or "CRPS" while others will use both terms.  Thus, search parameters should take this situation into account. 
 

American Pain Society-- http://www.americanpainsociety.org/
American RSDHope-- http://www.rsdhope.org/
For Grace--Changing the World of RSD-- http://www.forgrace.org/
International Association for the Study of Pain (IASP)-- http://www.IASP-pain.org
International Research Foundation for RSD/CRPS--  http://rsdfoundation.org
Mayo Clinic Information on RSD-- http://mayoclinic.com
National Institute of Neurological Disorders and Stroke (NINDS)-- http://www.ninds.nih.gov
National Organization of Rare Diseases (NORD)-- http://rarediseases.org/login_form
                             (or http://www.healthcommunities.com/ )  
Rare Diseases Search Engine-- http://www.raredisease.org
Trigeminal Neuralgia Association-- http://www.endthepain.org
RSDSA National Organization-- http://www.rsds.org
RSD/CRPS Treatment Center and Research Institute-- http://www.rsdhealthcare.org
WebMD Information on RSD/CRPS--  http://www.webmd.com/pain-management/guide/crps 
Worldwide Congress on Pain-- http://www.pain.com
 


Sorry to report that as of 1/2015 the following websites are no longer in service:
-American Pain Foundation http://www.painfoundation.org (Dissolved 2012)
-National Pain Foundation  http://www.nationalpainfoundation.org (Dissolved 2012)


Updated 1/10/2015