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A gallery of hopes, fears & inspiration shared by those living with interstitial cystitis.  Developed by an IC patient, this site Includes poetry, art, and recipes for individuals with IC.  Contributions are welcomed.

 

By temporarily replacing the GAG layer in a patient's bladder, Cystistat helps to relieve the common symptoms among patients with interstitial cystitis.  Reported to be one of the most successful treatments available for IC, Cystistat is prescribed in more than 20 countries.  It has not yet been approved by the U.S. Food and Drug Administration, and therefore is not yet available in the US, however it can be obtained through Canada.  

 

CystoProtek® is an all natural oral dietary supplement in a soft gel capsule that was developed and clinically tested to help promote interstitial bladder health* by significantly reducing the pain and improving overall symptoms in patients with interstitial cystitis.  Studies show that treatment with CystoProtek® has been associated with significant symptom reduction.  *This statement has not been evaluated by the Food and Drug Administration.  

 

Desert Harvest whole leaf aloe vera capsules have been shown in clinical trials to effectively reduce urinary frequency, burning, and pain that are a part of many bladder disorders, but especially interstitial cystitis. 

 

The EndoFEMM™ Pad is designed specifically for women & girls who suffer from chronic pelvic pain from Adhesions, Endometriosis, Irritable Bowel Syndrome (IBS), Interstitial Cystitis (IC), Menstrual Cramps, and Vulvodynia. With seven compartmentalized sections and "kick stand" bottom, the EndoFEMM™ Pad will become a favorite for relieving pelvic pain. Customers rave about the pad's shape, softness, and heat retention. Try our adjustable straps and washable covers (available in soft fleece). Plain and simple -- the EndoFEMM™ is superior!

 

The company's goal is to help individuals and their loved ones improve their health through recognized alternative products and therapies.  Alternative health therapies may offer the best solution: by helping the body detoxify and by supplying the body with proper nutrients, which then allows the body to begin the healing process. They offer several natural products that have been found helpful for individuals with IC.


HealingWell.com is a thriving community and information resource for patients, caregivers, and families coping with diseases, disorders and chronic illness. Their goal is simple....to help people on their way to "healing well". A variety of resources for managing chronic illness.

 

The Interstitial Cystitis Association (ICA) is a non-profit organization working internationally on behalf of all IC patients.  It has been largely through the efforts of the ICA that treatments are available and research is underway.  Its goals are: 

  • To provide the most comprehensive and up-to-date information on IC.
  • To provide patients, their families, and friends with a support network.
  • To educate the medical community and the public about IC.
  • To advocate in the public and private sectors for research funding and patients' rights.
  • To promote and provide research funding to find effective treatments and a cure for IC.  

 

The Interstitial Cystitis Network is a publishing company dedicated to interstitial cystitis and other pelvic pain disorders.  The ICN strives to present the best research, information, and support directly into the homes and offices of their users (patients, providers & IC researchers).  The ICN currently serves more than 200,000 patients a month in free education and support services (including a message board, online retail of IC products, and a newsletter).  The ICN, founded by an IC patient, began as an offshoot of one the largest IC support groups in the country in response to a need for support and education.  The IC Network provides rich information on many self help techniques, including diet.

 

ELMIRON (pentosan polysulfate sodium) is the first and only oral medication that’s been approved by the FDA for treating the pain or discomfort of interstitial cystitis (IC). It’s available by prescription only, and is believed to help repair and restore the damaged bladder lining.

 

P.U.R.E. H.O.P.E. (Pelvic and Urological Resources and Education Helping Others with Pelvic-Pain Everywhere) is a national non-profit patient led support group association that provides education and support locally, as well as advocates for and promotes pelvic pain research and education through conferences and partnering with the medical community.

 

Although not specifically dedicated to treating IC, this website is very informative on topics discussing women's health.  They are unique in that they offer the combination of alternative and conventional medicine in women’s health. Their practice reflects the reality of how our bodies work: everything - the physical, the mental, and the spiritual - is connected.  Because of the focus on underlying causes rather than simply upon the treatment of symptoms, they’ve developed special expertise in hormonal imbalance, premature aging, degenerative and autoimmune diseases, nutrition and digestion, breast health, and the organic basis of depression and mood disorders.