Be sure to mark your calendar for our next support group meeting!! Celi-ACT is joining with the Food Allergy Community of East Tennessee (F.A.C.E.T) to co-host an informative Back to School meeting on July 22, 2013 at 6:00 PM at Children's Hospital in the Meschendorf conference room on the 2nd floor of Koppel Plaza, located directly across the street from the main hospital entrance. This event is FREE to all and will be especially helpful if you have school-aged children and/or need nutritional advice on navigating the school system while following a specialized/allergenic diet. We will also have guest speaker Melissa from STEP (Support and Training for Exceptional Parents) come to speak at this meeting who will provide invaluable information about 504 plans, talking with school administrators and managing allergic reactions during school hours plus more. The purpose of STEP is to support families by providing free information, advocacy trianing, and support services to parents of children eligible to receive special education services under the Individuals with Disablilities Education Act (IDEA). STEP services are available to any parent or family member of a specal education student or a student who may need individualized help in school. Dr. Youhanna Al-Tawil, Pediatric Gastroenterologist of GI for Kids, PLLC and the Medical Director for F.A.C.E.T will also be available to answer questions.
Remember, parking is FREE in the Children's Hospital parking garage (located on Clinch Avenue) or in the street metered spaces surrounding the hospital. Beverages will be served. Please feel free to bring hypoallergenic snacks or recipes to share!!
We hope that you will join us for this important Back to School meeting! Check our facebook event page and RSVP if you are able to make it! Thank you and hope to see you there!
- November 7, 2011
Dr. Youhanna Al-Tawil, Medical Director for GI for Kids, PLLC spoke at our annual meeting at the Outback Restaurant on North
Peters Road in West Knoxville.
- Tuesday, Sept. 13, 2011
at 5:30pm- Earth Fare/Turkey Creek. Cooking demonstration, refreshments, and store tour. Please join us.
- July 21, 2011
Spirit of Service Awards
- March 12, 2011
3rd Annual Gluten Free Vendor Fair
- Tuesday, January 11, 2011
We had our meeting at EarthFare in Turkey Creek, with cooking demonstrations and free samples.
- Monday, November 15, 2010
Our annual holiday dinner at Outback. We had around 60 attendees - may new to celiac - who enjoyed dinner and hearing from our sponsor, Dr. Youhanna Al-Tawil of GI for Kids, PLLC. Dr. Al-Tawil always provides valuable insight as he provides Q&A to our group.
- Monday, September 13, 2010
"Cooking Tips" with "Gluten Free Bake & Taste"
A panel of expert cooks offered tips on baking with alternative gluten
free flours, additives, helpful cooking aids and problem solving during
- Gluten Free Summer Camp 2010 was held in July at Camp Wesley Woods.
This is always a special time for our GF kids - an opportunity to
experience summer camp in a worry-free GF environment.
- Monday, July 12, 2010, 6:00 - 7:30
Our annual meeting with tips on how to help your kids' teachers understand the challenges of the GF lifestyle.
- Monday, May 10, 2010, 6:00 - 7:30
Traveling Gluten Free!
Guest Speaker was Adria Farr, Head Majorette at the University of
Tennessee Diagnosed with Celiac Sprue at the age of 14, Adria Farr has
the experience of dealing with Celiac Sprue through high school and four
years of college. Adria is from Windham, New Hampshire. She is a Senior
at the University of Tennessee-Knoxville, where she is majoring in
History and minoring in Political Science. While at UT, she was a
majorette, feature twirler, and Head Majorette with the Pride of the
Southland Marching Band. She also competed in Miss Tennessee where she
came in the Top 10 and won preliminary talent. She will be competing in
Miss New Hampshire in April. Her personal platform is "Against the
Grain" Celiac Sprue Disease Awareness and Support. She promotes this
platform throughout the community.
- Monday, March 8, 2010
Dr. Andrew Singer of Allery & Asthma Affiliates joined us to discuss
living with food allergies. Many of our families deal with multiple
food allergies and this will be addressed by Dr. Singer.
- Vendor Fair Followup
Saturday February 27, 2010
Our second annual Gluten-Free Vendor Fair was very successful with over
800 people attending and enjoying the vendors that were there.. See the
Knoxville News Sentinel Story here.
We look forward to next year and have already begun working on some new ideas to add to the success of the Vendor Fair. The Vendor Fair committee wishes to thank you for coming and supporting this event.
See you next year!
- Monday, January 11, 2010
"Putting Celiac in its Place"
Dr. Regina Hummel, Clinical Child Psychologist at GI for Kids, PLLC
An interactive talk geared towards kids to help them understand how to
deal with food situations that are out of their control ie: birthday
parties, church socials, eating out, etc; decreasing social anxiety to
help increase compliance, effective communication skills to avoid
confrontation, plus more.
- Monday December 7, 2009
Our fourth annual meeting at this fun-filled space with giant inflatables for kids (and adults).
- Monday November 9, 2009
Dr. Youhanna S. Al-Tawil joined our group at Outback Steakhouse for what
has become an annual tradition, a chance to share a GF meal and the
opportunity to "ask the doctor."
- Saturday, September 26, 2009
Boogie Down Baby hosted a dance party at Carabba's Italian Grill. Great event with a lot of fun and prizes.
- Monday July 13, 2009
"Helping Your Child’s Teacher Help Your Child” Distributed packets for
your child’s teacher for the first 50 families with information about
classroom needs on a GF diet as well as a general explanation of living a
Mary Lou Henry, Director of Food Services for Knox Co Schools, was our guest.
A representative from Camp Wesley Woods shared some news about our first Celiac Camp.
- Monday May 11, 2009
Joining us via teleconference was Tricia Thompson, MS, RD. She discussed
the nutritional quality of the gluten free diet. Thompson is a
nutrition consultant, author, and speaker specializing in celiac disease
and the gluten-free diet. She has written numerous articles for both
scientific and popular readers. The call was very informative with a lot
of Q&A. Thanks Tricia!
- May 2, 2009
Celi-Act Gluten-free Vendor Product Fair was a Great Success!
Our first GF Vendor Fair was a huge success! We had 698 people attending
and they were able to sample food from 30 different vendors! We wish to
thank everyone for coming and showing their appreciation for this
event! People stood outside in the rain waiting to come inside and were
happy to be there!
Many of the people coming were able to share their stories of how much
better they have felt since going gluten free! It was great to see how
many people are in better health since following a gluten free diet!
- Monday, March 16, 2009 "Cooking techniques with the experts." Local
GF chefs fielded a variety of questions about cooking gluten-free.
- Monday, January 19, 2009- Events at Sherlake. Our third annual
meeting at this fun-filled space with giant inflatables for kids (and
adults) to play on.
- November 10, 2008, Outback Steakhouse. Dr. Youhanna S. Al-Tawil with
Children's Pediatric Gastroenterology at Children's Hospital fielded
questions from the group. Always an informative evening when Dr.
Al-Tawil is with us.
- September 19, 2008 – Special Guest Presentation
- Cleo Libonati, RN, BSN, the author of "Recognizing Celiac Disease,"
gave her presentation, Celiac Disease: Symptoms, Nutritional
Deficiencies and How to Achieve Wellness Living Gluten-Free.
- July 21, 2008 –Helping Your Child’s Teacher Help Your Child” We
distributed packets for your child’s teacher for the first 45 families
with information about classroom needs on a GF diet as well as a general
explanation of living a GF lifestyle.
- May 19, 2008 – Review of recent media coverage highlighting some
members of our group. Learned about a new GF catering business in
Knoxville, The Happy Badger. Welcomed a few new members and met Ashley
Rogers, RD, new dietician on Dr. Al-Tawil's staff. Our July meeting will
cover back-to-school issues, and will further discuss upcoming visit by
Cleo Libonati, as well as the annual golf tournament in September.
- March 10, 2008 –Meeting was held in the waiting room of Children's
Pediatric Gastroenterology, PC, (Dr. Al Tawil's office, 5th floor,
Children's Hospital Medical Office Bldg.) Group discussed an upcoming
event at the Knoxville Zoo, plans for a summer camp for celiac kids, and
a new meeting group, the "lunch bunch." Dietician Sandy Altizer gave a
presentation, "Celiac Sleuth: Find what's missing in your diet."
- January 21, 2008 – Children's Hospital, Presentation and discussion
with representatives of Nature's Pantry, which is increasing its stock
of gluten free foods.
- November 12, 2007 – Outback Steakhouse, 330 N. Peters Road. Our
largest meeting of the year included Dr. Youhanna Al-Tawil from
Pediatric Gastroenterology P.C. answering questions.
- September 17, 2007 - Events at Sherlake. This was a fun opportunity
for kids to play on indoor inflatable slides, obstacles, and other
games, while the parents met. We discussed the recent golf tournament
and thanked the sponsors, who also attended.
- July 16, 2007 - Back to school preparations include a tentative plan
to hear from a Knox County School official about 504 plans. (Section
504 of the Rehabilitation Act of 1973).
- May 21, 2007 - Dr. Carmen Tapiador, Pediatric Endocrinologist, spoke
on the challenges of diagnosing and living with celiac disease, and its
relationship to other auto-immune disorders, including diabetes.
- March 19, 2007 -We discussed a group of our celiac kids enrolling in
a gluten-free cooking class, enjoyed samples of gluten buns, discussed
cooking and recipes, and tried out a lot of samples from PureFit,
Glutino, Ener-G and Foods Alive, among others. Thanks to all these
vendors for their support.
- January 15, 2007 - We had a very productive discussion about forming
a strategy to approach local restaurants. A small team will work
together to produce educational materials and identify restaurant
management to present to, with the goal of having more local restaurants
offer gluten-free items.
- November 13, 2006, 6-7:30 - We had a great turnout for our first GF
dinner at Outback Steakhouse. Dr. Al-Tawil fielded questions on a
variety of topics related to celiac, and we welcomed several new
- September 18, 2006- Had a fun evening at Events at Sherlake, an
indoor playground with hugh inflated slides, obstacle courses, and other
games for kids (ok, and adults too.) Also heard from Dennis Chapman
with KeHe Food Distributors about GF offerings at Food City and how the
grocery store supply chain works. See the photos from this event here.
- July 17 2006 - Brainstorming session-generated thoughts on the
future of our group. How can we best serve celiac patients? What would
you find really useful?
- May15 2006 - Dr. Jerry Griffith, psychologist spoke about coping skills and adapting to change.
- March 27th, 2006 at EarthFare, Turkey Creek - Gluten free cooking demo.
- January 16th, 2006, first meeting of the group.