Infectious Diseases Society of America (IDSA) 
Centers For Disease Control (CDC) 

Their Views On Lyme Disease

Gary Wormser says... “Right now, in the published literature, there is no evidence of persistence in humans, and if there were I would say,So what?’" he told me recently.  Gary Wormser

Gary- So What?- Wormser
NY Medical College, Valhalla, NY
Lead Author of 2006 IDSA Lyme Guidelines


The Infectious Diseases Society of America (IDSA), the Centers For Disease Control (CDC) and the American Lyme Disease Foundation (ALDF) believe sick Lyme disease patients should not be treated with more than a minimal amount of "cost-effective" antibiotics. They believe there is no such thing as "chronic Lyme disease" in spite of years of scientific and clinical evidence proving otherwise.  

Some members and their supporters believe recurring Lyme symptoms experienced by patients after minimal treatment are simply the "aches and pains of daily living" and want you to call it Post-Treatment Lyme Syndrome, rather than chronic Lyme disease.  

They believe not treating a relapsing, recurring and potentially disabling bacterial infection with antibiotics in the presence of continuing symptoms or when symptoms return is a safe and more successful approach for the patients. 

Chronically ill Lyme patients, volunteer patient advocates, 
Lyme organizations and Lyme treating doctors do not agree!

In fact, the Connecticut Attorney General (Richard Blumenthal) concluded his lengthy investigation into the Infectious Diseases Society of America Lyme disease guideline panel development process (2008), stating:

"The IDSA's 2006 Lyme disease guideline panel undercut its credibility by allowing individuals with financial interests -- in drug companies, Lyme disease diagnostic tests, patents and consulting arrangements with insurance companies -- to exclude divergent medical evidence and opinion."

The IDSA's own hand-picked panel (2010) reviewed their 2006 Lyme Disease Guidelines as part of a settlement agreement with the Attorney General.  The Panel, with IDSA members and its past-president as members, recommended more than twenty changes be implemented.  They stated the IDSA Lyme disease guideline authors overstated their position or did not provide adequate documentation for many of their conclusions.  

The Panel recommended changes be made in the following areas: 

Prevention

Early Lyme Disease

Early Neurologic Lyme

Cardiac Manifestations of Lyme Disease

Borrelial Lymphocytoma

Late Lyme Arthritis

Late Neurologic Lyme

Acrodermatitis Chronica Atropicans

Post Lyme Syndromes

HGA

Babesiosis 

NO CHANGES WERE MADE!  

THE IDSA REFUSED!

Update-  The Institute of Medicine (IOM) reported the IDSA Lyme Disease Guideline development process was an example of the way NOT to develop guidelines.  

Update-  The 2006 IDSA Lyme Disease Guidelines expired.  They are scheduled to be removed from the National Clearing House website at the end of 2011.

Update-  The IDSA guidelines were not removed as scheduled.  The Department of Health and Human Services (Federal Government) is allowing them to remain on the National Guidelines Clearinghouse website, going against their own policies.

Update-  Protests, rallies and activism by thousands have not convinced the Centers for Diseases Control (CDC) or the IDSA to remove their outdated, unsuccessful and substandard guidelines from use.  Insurers continue to use the defunct IDSA guidelines as a basis to deny coverage. 

Update- Even with Congress and State legislators intervention efforts, the CDC refuses to add links to other Lyme treatment guidelines to their website, or remove the defunct IDSA guidelines from their site, which denies doctors and patients a choice, the ability to be treated and supports the insurers.

Update-  The IDSA guidelines were finally removed from the National Guideline Clearinghouse (2016).  They remained on the site for 10 years, which was 5 years past the "expiration date".  Imagine forcing a cancer patient and cancer doctors to use outdated, corrupted, substandard medical treatment guidelines.   

This website is an attempt to educate those who want to learn the IDSA/CDC 

View points on diagnosing and treating Lyme and tick borne infections.

Hint...

It Ain't Successful and It Ain't Pretty!   












Hudson New York
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