There is hope

posted Sep 6, 2011, 6:22 PM by Heather Burnell
A family contacted us this weekend to say their daughter was just diagnosed with GAN.  As a Mom, I can't even think about what hearing that news must be like without tears welling in my eyes.  Yet, as I communicated with the Aunt of the newest child we add to the group that we are fighting to save, it struck me that as hellish as the news must be for this family, those of us who have been throwing our hearts, time, energy and money into finding a cure, have given this family an infinitely priceless gift - and that gift is so important it is embedded in our name - Hannah's HOPE.  This family has something that Lori and Matt, Hannah's parents, didn't have when they first received Hannah's diagnosis.  Because Lori and Matt said, "Somebody has to be the first person to beat this disease," this family that is coping with this new diagnosis has hope.  Once again, I say thank you, from the bottom of our family's heart for all you have done and continue to do for Hannah and all of the children with GAN. ~ Heather Burnell Tutwiler (Lori's cousin)
 
 
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