Eric Valor had just turned 36 when he was diagnosed with ALS (amyotrophic lateral sclerosis or Lou Gehrig’s disease). Before this time, he was an avid surfer, snowboarder and scuba diver. The continued advance of ALS led to his early retirement by February 2008. In July of 2008, Eric suffered a pulmonary event that required a tracheotomy and the permanent use of a ventilator. By this time he had also lost his ability to eat and was fed through a tube to his stomach. You can learn more by reading his "My History With ALS".

 Eric's Current Projects 

SciOpen Research Group
(Founder & President)

Answer ALS
(Team Gleason Board)

(Board Member, Science & Technology Adviser)

ALS Untangled
(Review Group)

The ALS Emergency Treatment Fund
(Co-Founder & Science Officer)

WSU Team Gleason
(Patient & Technology Adviser)

Hope Now for ALS

 Various other technology development and advocacy projects which will be listed as they become public. 

Since 2008, Eric has required 24/7 ventilation monitoring and care. He is completely dependent on a team of health caregivers and local family members, all of whom are specifically trained for ALS patient care and ventilation management.

Unfortunately, insurance does not extend benefit coverage for paid caregivers and funds are continuously needed to help maintain Eric’s quality of life at home. There are no extended care facilities that serve patients like Eric, people who are completely dependent on a ventilator and need constant monitoring by others to survive.

Eric's team of caregivers take fine care of Eric and have become extended family.

If you would like to help, please click the How You Can Help link on the left. No donation is too small.

You can read Eric's blog or you can contact him directly via email at ericv@cruzio.com.

Subpages (1): Jumping Joan!