Forums, list serv and groups

There is a multilingual  HSP forum maintained by EURORDIS. You can request for the translation of the messages to your language.
The US SP Foundation maintain an HSP List Server that you can join at

The Spanish aepef has two distribution lists in Spanish:
  • One only for AEPEF members (
  • The other for any person interested in the HSP (
At (maintained by the German HSP Group) you also can find  some forums:
  • English HSP Forum
  • Deutschssprachiges HSP Forum
  • Norsk forenig for Arvelig - Spastik Paraparese / Aaksi (NASPA)
  • Dansk HSP Forum
In Facebook you can find also: