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Patient concerns

As described in this book, Barrett's Oesophagus can progress to cancer in a small number of cases.

Is the anxiety of the diagnosis of Barrett's Oesophagus worse than the reality of the prognosis?

The following are just a few of the hundreds of comments the author has received from Fearful Newly Diagnosed (FND) patients diagnosed with Barrett's oesophagus.

"I was diagnosed back in February and I was absolutely devastated. I have had lots of things going on at the same time, but this diagnoses put me over the edge."

"I was.diagnosed with Barrett's a few months ago ... scared out of my mind"

"I was diagnosed with Barrett’s esophagus about 9 days ago. ... I am petrified"

"I have just been diagnosed with BE. How can l stop it turning into Cancer? I'm scared"

"I have been a crying mess since diagnosis. I am petrified that this will progress into cancer"

"I was terrified when I started reading everything on line it makes it sound like a death sentence."

"I'm not gonna lie, I'm scared"

Perceptions of risk and therapy among patients with Barrett's esophagus: a patient survey study
"Patients with Barrett's esophagus overestimate their risk of developing esophageal adenocarcinoma and will accept low success rates and high risk of complications to undergo endoscopic therapy. "

Elevated cancer risk perceptions among patients with Barrett's esophagus: do psychological factors play a role?
"greater emphasis on patient-centered communication strategies during conversations about Barrett's esophagus and cancer risk may be helpful for reducing patients' psychological distress"

'Stop Scaring Patients': How Esophageal Cancer Evolves
"After you tell a patient that they have Barrett's and that only a very small minority develop cancer, just stop. Stop and acknowledge that you said a very scary word, 'cancer.'"

Renaming low risk conditions labelled as cancer

"Evidence is mounting that disease labels affect people’s psychological responses and their decisions about management options"

Overdiagnosis and the cancer label

"Using loaded labels such as “cancer” can make patients more worried ... which can cause them to choose more aggressive management options—with more risk of harm."