CLL and the CLL List

What is CLL?

Chronic lymphocytic leukemia (CLL) and small lymphocytic lymphoma (SLL) are both B-cell Non-Hodgkin Lymphomas. CLL and SLL are considered the same underlying disease with different manifestations. CLL is found mainly in the blood and bone marrow, whereas SLL is located mostly in the lymph nodes and bone marrow. CLL progresses slowly for most patients, and does not progress for some patients.

CLL is the second most common type of leukemia in adults. It often occurs during or after middle age; it rarely occurs in children.

If you are newly diagnosed, you may want to begin with a video by Dr. Timothy Call's Chronic Lymphocytic Leukemia (CLL)-Mayo Clinic and follow with Advice for New Patients. More information about CLL may be found under Information Links.

What is the CLL List?

The CLL List is an electronic mailing list hosted by the Association of Online Cancer Resources (ACOR). The CLL List uses the ListPlex® Email List Hosting Service to broadcast by email to the 3000+ members subscribed to the list from around the world. Only subscribed members receive the communications between members of the CLL List. The CLL List is managed completely by volunteers.

The CLL discussion community welcomes patients, family, friends, researchers, and physicians to discuss clinical and non-clinical issues and advances pertaining to CLL. It includes patient questions and experiences, anxiety and coping issues, interpretation of test results, staging, new research, clinical trials, and discussions of current treatment practices. The principal focus is information and reassurance for caregivers and patients, whether newly diagnosed, in "watch and wait," in treatment, or post-treatment.

It is easy to Subscribe to the CLL List.

Who started this list? Why?

Barb Lackritz, known to the international CLL community as GrannyBarb, was diagnosed with CLL in 1989. Recognizing the dismal amount of information available for CLL patients, she grew active in CLL-related organizations. In 1995, she pioneered the CLL List, the first international CLL internet discussion group. She continued her leadership until her death in 2003. Her idea to bring CLL patients and caregivers together for internet dialogue and support through the CLL List was a fundamental new direction in patient power and remains strong today.

DISCLAIMER

Information posted on this site or on the CLL mailing list is for educational purposes only and is not intended to replace or give any medical advice or treatments. Any information pertaining to your health should be reviewed with your personal healthcare professional.

No liability, explicit or implied, shall be extended to the owners, maintainers, or sub-contractors of this listserv for messages posted to the list. This material carries no assurance of accuracy or liability, explicit or implied.