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Ok,… I know people don’t like to waist a lot of time reading about people’s complaints…. BUT, if you or a loved one has received the diagnosis of cancer PLEASE take time to read this about the Bursznski Clinic in Houston Texas! We feel we were scammed…. And would like to save others from experiencing the same!

My husband was diagnosised with stage IV Pancreatic/Liver Cancer in September 2009. This sent us on a frantic search to find a suitable treatment. I had just finished up treatment for Breast Cancer, and he had watched me go through chemo and radiation, so to say the least, he was not thrilled with the idea of having to do the same, especially when the prognosis for pancreatic cancer is very grim in itself, with no hope of survival, according to the medical community. We were told less than 6 months with conventional treatment,… and 6-12 with treatment. We felt like we had to try something that would at the very least, give us hope.

In came The Burzynski Clinic in Houston TX. They claimed to have had success with Pancreatic/Liver Cancer patients! Up to 5 years of survival, we were told. Wow! 5 years sounds like an eternity when you’ve been given only 6 months!!!! They sent us all the paperwork. We sent them all the medical records, and plans were made to become a patient. We were told that insurance would cover, not all, but some of the treatment. We knew there would be some out of pocket expense, due to his treatment protocol being somewhat out of the norm from the rest of the medical community. We went expecting an initial, upfront cost for consultation with Dr. Burzynski and staff, and an overall checkup.

We were a little taken aback when we arrived and the “clinic” was a “suite” on the second floor of a 3 story building. Hmmmm…… I tried to pass it off. When you want so hard to believe something, you end up listening to your heart and not your head. Then came our meeting with the doctors… it went well.  Dr. Burzynski personally assured us that he had had success with this particular type of cancer. “two months” he said, “and we’ll see a difference.” THEN it was time to go see the Insurance Coordinator. Whoa! Ok… the first visit wasn’t that bad…. She asked for the initial upfront money we knew were going to need to pay. Then from that day on… this was our life…..

·         Office visit

·         Simple checkup by the nurse, using sub-standard equipment

·         Doctor visit, not Burzynski, never saw him again

·         Addition of medication

·         VISIT TO THE INSURANCE COORDIANATOR TO HEAR HOW MUCH WE WOULD BE CHARGED FOR THE ADDITIONAL MEDICATION. We were told over and over again… “this is upfront, out of pocket, but I’m trying to get the insurance company to pay on it”.  (we have good insurance, one of the best)

Now, keep in mind, these were not $100’s of dollars for the meds, but $1000’s!

I’ll spare you all the gory details, but when all was said and done…..

·         We were out almost $20,000 to the clinic

·         We were out $ for accommodations, since Burzynski in an outpatient facility

·         We were out $ for travel expenses

·         AND after got home and started figuring up all the medications they had put him on and how much it would cost us to keep him on them… we nearly choked on our tongues when it added up to almost $30,000 per month!

You would think that is as bad as it could get…. But NO!!! We decided there was no possible way we could afford to do this, and called the clinic to see how we might start weaning him off the medicine prescribed by Burzynski Clinic. WE WERE NOT GIVEN TO A NURSE OR DOCTOR, BUT TO THE INSURANCE COORDINATOR!!! We never got information from them about how to come off the meds… we ended up calling our local pharmacist and he was able to help us out.

This is where we are……

·         Burzynski gave my husband standard chemotherapy medications along with the long list of other meds that were supposed to work in conjunction with each other. We were never told that two of the medications were conventional chemo medications. AND one medication that they charged us over $2300 for,.. we found out from our local pharmacy that we could have purchased it for around $170 from them.

·         SO…. After we stopped with their treatment,…. We were told that he WOULD NOT BE able to take part in any first round clinical trials, because he had taken chemo medications, no matter how small the dose, or how short the duration. WE WERE NOT TOLD THIS UP FRONT.

·         We contacted several facilities, including The University of Texas, MD Anderson Cancer Clinic. None of which will see him because of the treatment he received at Burzynski Clinic.

·         His only option now is conventional chemo treatment, which is what we were trying so hard to avoid in the first place!

PLEASE, IF YOU ARE CONSIDERING GOING TO OR TAKING A LOVED ONE TO BURZYNSKI CLINIC, BE CAREFUL!!!! DO YOUR HOMEWORK! THEY WILL TRY TO DRAG YOU IN A BIT HERE AND A BIT THERE AND BEFORE YOU KNOW IT, YOU MAY BE LIKE US…. LEFT WITH NO PLACE TO TURN!!!!! AND $20,000 POORER!!!!!! AND we only received treatment for less than a month!

OH,… and as for the people they had helped with pancreatic/liver cancer…. They gave us a list of contacts. The sheet contained 4 names of pancreatic patients, 1 would not allow you to contact them, and out of the other 3, the earliest diagnosis was in March of 2009! Where are the people that have survived for 3 years, 4 years, 5 years!!!!???? Heck, even 1 year would have been nice!

Burzynski is selling false hope at a price no common person can afford! Proceeds go toward Mrs. Burzynski’s wardrobe, diamonds, and furs… Dr. Burzynski’s Mercedes Benz, and the 20,000+ square foot house they share, or so I’ve heard.

9/7/11 Update: This month marks two years, and Wayne is still doing great. We chose another treatment plan,.... outlined on sites.google.com/site/fightingpancreaticcancer/