All money raised on the night will be going to the Multiple Sclerosis Trust. The choice of charity was inspired by a young lady called Becci, VentianLady’s daughter .You can also donate before the event via Forum Fairies Fundraising page.
Lainney, one of the forum members, raises money for MS by selling hand-made name plates. All profits made through sales of nameplates go the the MS Trust. Further details can be found on Lainney's Name Plates page.
~ Diagnosed with Multiple Sclerosis in January 2011 ~
The relief quickly turned to upset after trawling the Internet and reading up on MS. The images you mostly see of people with MS are of people in wheelchairs, having problems walking, eating, talking (always helps gain the sympathy vote and raise more money!). In reality, this is not always the case, although in one relapse I did have to have help with dressing and cutting up my food. This can be a very humbling experience. A sense of humour’s essential, though, to keep things in perspective - my partner spends ages in the shower and rather liked the idea of having a seat in there! But most people would not realise that I have the disease. In some ways this makes it worse, as with minimal outward signs there is the tendency for people to forget the daily struggle that we have. Fatigue, coordination, balance, cognitive issues, bladder problems, mood swings, sleep disruption. And that's not to mention the worry every morning when you wake up and have that split second when you wonder if your arm is dead because you've slept on it or whether it's the start of a debilitating relapse. How will I work? Drive? Socialise? Look after the kids? The positive thing about MS is it makes you take each day as it comes and be thankful for the good days.
As yet there is no cure for MS, although there are a handful of disease modifying treatments for it. I've been lucky that my medication appears to be working. The weekly injection is a painful reminder that I need to be grateful for access to this expensive medication. This also gives me the motivation to look after my body with diet and exercise, to feel like I am giving myself the best and healthiest future possible against the odds I have been dealt. I also believe that a positive mental attitude is crucial – you cannot simply allow the disease dictate the terms, you have to try and meet it head on.
Maybe in the future the 6 monthly MRI scans and neurologist appointments wont be necessary, and with all the research that is going into this disease, I am ever hopeful that a cure will be found, if not for me then for future generations. In the meantime I'm grateful that I can still lead a fairly full and active life and hope that this may continue for many years. And so, we went out for a celebratory drink and meal on January 31st 2012, to acknowledge the anniversary of the diagnosis and to celebrate a year with no worsening of my condition.
I would like to say a big “Thank You” for this opportunity to raise some awareness of Multiple Sclerosis, and I welcome any opportunity to help raise funds for The MS Trust.