OCNA Conference 2013

In July 2013, Kathy Tabb was the recipient of a scholarship to attend the Ovarian Cancer National Alliance 16th Annual Conference and Lobby Day in Washington, DC.  Participants came from across the country as well as England and Canada to celebrate the theme, Voices of Hope and Strength: Teal is Personal. Nearly 400 attendees learned about the latest in ovarian cancer research, how to live your best with cancer and ways to be an advocate for yourself and others. On Monday, nearly 200 women and men visited Capitol Hill to talk about the importance of ovarian cancer research funding and awareness.

Kathy was asked to participate on a panel to instruct some of the international attendees on how to organize and present the Survivors Teaching Students(R) Program. Survivors tell their cancer story to students in the medical field in an effort to help them recognize the signs and symptoms of ovarian cancer and to refer women to a gynocologic oncologist for further testing when indicated.

The following links are to information that was given at conference presentations:


What’s New in Ovarian Cancer Research

 Dr. Coleman will discuss the current state of ovarian cancer research and what to look for in the future.Robert Coleman, MD, Professor and vice Chair, Clinical Research, Department of Gynecologic Oncology, The University of Texas, MD Anderson Cancer Center, Houston, TX.

Dr. Coleman’s Slides on What’s New in Ovarian Cancer Research


There is Only One You:  Targeted Therapies

 Advances in genetic and genomic pathways are leading to therapies targeted to our own genetic mutations and our tumors’ unique pathways. Explore the current state of personalized medicine and hopes for the future.

Elise Kohn, MD, Senior Investigator and Section head, MedicalOncology Branch, Center of Cancer Research, National Cancer Institute, Bethesda, MD. Robert Morgan, Staff Physician, Department of Medical Oncology, City of hope Comprehensive Cancer Center, Duarte, CA.

Robert Morgan’s Slides on Targeted Therapies

 

 Your Coverage, Your State

Learn how the states are dealing with the passage of the Affordable Care Act and their increased role in health care.

Leni Preston, Chair, Maryland Women’s Coalition of health Care Reform, Potomac, MD.

Leni Preston’s slides on Your Coverage, Your State

  

Teal is Taking Action

Hear from experts how to advocate for yourself at home and on Capitol hill.  Learn effective tips for having your voice heard.

Sharon Levin, Director of Federal Reproduction health Policy, National Women’s law Center, Washington, DC. Claudia Malloy, National Outreach Director, National Wildlife Federation, Washington, DC. Lauren Samet, Assistant Director, AFT Paraprofessionals, Washington, DC.

Claudia Malloy’s slides on Teal is Taking Action

  

You: Empowered 

This session will address issues of survivorship and living your best.

Annamarie DeCarlo, Patient Advocate, Annapolis, MD. Rebecca Kirch, JD, Director, Quality of life and Survivorship, Cancer Control, American Cancer Society, Washington, DC. Ellen Stovall, Senior health Policy Advisor, National Coalition for Cancer Survivorship, Silver Spring, MD.
Rebecca Kirch’s slides on 
You Empowered

 

Caring for the Caregiver

 This session will address the crucial role of the caregiver and how to take care of yourself while taking care of a loved one.

Kathy Nugent, Director of Social Services, CancerCARE, Ridgewood, NJ. 

Kathy Nugent’s slides on Caring for the Caregiver

 

Body Image and Sexuality

 A discussion of changing body image and sexuality during cancer treatment.

Sharon Bober, PhD, Founder and Director, Sexual health Program at Dana-Farber Cancer Institute, Boston, MA

Dr. Bober’s slides on Body Image and Sexuality

 

Clinical Trials: From Patient to Implementation

 An in-depth look at the present state of ovarian cancer clinical trials and what we should expect in the future.

Carey Fitzmaurice, President, Teal Toes, Inc., Bethesda, MD. Geoffrey Kim , MD, Food and Drug Administration, Silver Spring, MD. Maureen Maker, Patient Advocate, Denver, CO. Yu-Ning Wong, MD, MSCE, Fox Chase Cancer Center, Phila-delphia, PA.

Dr. Wong’s slides on Clinical Trials:From Patient to Implementation

 

Genetics in Your State

Katrina will speak about the genomics cooperative agree-ments and what the states have accomplished.

Katrina F. Trivers, PhD, MSPh, Epidemiologist, Division of Cancer Prevention & Control, Centers for Disease Control & Prevention, Atlanta, GA.

Dr. Trivers’ slides on Genetics in Your State





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