Our Contact details:
Emails: Chairman@BarrettsWessex.org.uk will email the chairman
Telephone: 07771 567009
Write to: Barrett's, 6 Braeside Crescent, Southampton, SO19 7AZ
Barrett's Oesophagus UK (www.Barretts.org.uk) provides a directory to sites and useful information carried on the internet specific to Barrett's Oesophagus.
www.DownWithAcid.org.uk - free book on management and complications of acid reflux.
www.PTYO.org.uk - Point To Your Oesophagus initiative to raise awareness.
Hubs within the Wessex area (microsites within this main site - also found under the Activities tab):
Bournemouth hub: www.BarrettsBournemouth.org.uk
Bath hub: www.BarrettsBath.org.uk
Salisbury hub: www.BarrettsSalisbury.org.uk
Essex group (affiliated to Barrett's Wessex): www.BarrettsEssex.org.uk
London support group managed by Heartburn Cancer UK:
East Anglia support group managed by Heartburn Cancer UK:
The main national site packed full of information about the condition.
On-line support forum (BOC forum - linked to by our FORUM tab above)
To ask questions from and share experiences with other Barrett's sufferers. (Managed by Barrett's Wessex)
Action Against Heartburn (AAH)
Consortium of charities promoting earlier diagnosis of oesophageal cancer
Oesophageal Patients Association (OPA) for those affected by oesophageal cancer.
(Support for Portsmouth and the Local Area of South Hants)
The Oesophageal and Gastric Cancer Patient Support Group (previously known as the Upper GI Support Group) was established with the help of the upper GI nurses at QEHB to provide a forum for patients to discuss any issues or problems they might be experiencing.
OG (Oesophageal Gastric) Cancer Project is a charity based in the South East of England at the Royal Surrey County Hospital in Guildford and set up to benefit and support OG cancer and surgery patients, their family and friends pre, during and post treatment and to aid early awareness through research.
Oxfordshire Oesophageal and Stomach Organisation is a support charity for those affected by oesophageal or stomach cancers.
Humberside Oesohageal Support Group, based in Hull, HOSG are a small group made up of people who have experienced, or cared for someone with, oesophageal cancer, or Barrett's Oesophagus or similar oesophageal problems.
The Gutsy Group is a support group for people diagnosed with, or recovering from, oesophageal and gastric cancers. It has three branches covering Worcester, Gloucester and Wrexham /North Wales that tend to meet monthly.
Upper G.I. Blues is a patient and carer support group for people who have been diagnosed with upper gastro-intestinal cancers, based at Sandwell General Hospital, West Bromwich.
Wessex Cancer Trust exists to provide local support for people living with or affected by cancer, irrespective of their age.
Other members of Action Against Heartburn are:
Cancer Research UK (CRUK)
Ochre Charity (Scotland)
ECAN (the Esophageal Cancer Action Network)'s mission is to save lives by increasing awareness about the link between Heartburn and Cancer, promoting early detection, supporting medical innovation to prevent, detect, treat and cure Esophageal Cancer and link patients and families to compassionate support. This national non-profit organization, based in Baltimore, is led by a board of directors of top physicians, business leaders, and families that have been touched by Esophageal Cancer.
Oesophageal Cancer Fund raises awareness and funds research, holding a "Lollipop Day" annually.
The BOC forum (linked to from our FORUM tab at the top of the page) is the only on-line forum specifically for those with Barret's Oesophagus and associated conditions.
Other UK based forums:
OPA has a forum hosted by HealthUnlocked, here, that is aimed primarily at oesophageal cancer patients.
Patient.info have a number of forums including some dedicated to aspects of reflux and acid.
US based forums:
MD Junction hosts many forums including the following: Barrett's Esophagus, GERD and Esophageal Cancer
Amongst forums hosted by Health Central, there is one for Acid Reflux.
eHealthForums also has a forum for Acid Reflux.
MedHelp has an "Expert Forum" for GERD.
Johns Hopkins pathology also host a Barrett's Esophagus Discussion Board here.
Heartburn-Help forum may be accessed here.
Others forums may be found here:
For mums with infants suffering reflux problems, Infant Reflux Disease has a forum here, whilst LivingWithReflux have moved their forum to facebook.
Most of the charities linked to above also have facebook pages. Barrett's Wessex's is linked to on the left pane. Barrett's Oesophagus Campaign has Facebook.com/BarrettsOesophagus
These groups also exist. Being closed groups you have to apply for membership.
Links are provided for information purposes only. Inclusion does not imply endorsement of the information or the provider. As with all on-line forums and facebook groups, it is up to the visitor to assess the legitimacy of any advice that is presented.
Do be aware, when browsing the web, there are many sites of dubious quality.
You will find sites selling what they claim to be cures for acid reflux that are probably not worth wasting money on.
If there is a link you feel should be included that is not shown, please contact firstname.lastname@example.org