Patient Support Services
BOC provides patient support in a number of ways:
Barrett's Wessex is an independent patient support charity allied to BOC and chaired by Chris Robinson, a previous trustee of BOC, with over 300 members, mainly from the Wessex region.
The latest newsletter from Barrett's Wessex is available from the News page of their website: www.barrettswessex.org.uk.
Barrett's Wessex is the start of a growing family of support groups:
The on-line patient support forum has around 1200 members currently, 200 of whom have been active in the last 6 months. Thanks to the diligence of our web manager, we have been successful in eliminating the spam postings that have caused problems on other forum sites.
Most members live in UK but we also attract a significant number from overseas. Most new members find the forum following an internet search after being diagnosed with something they have never heard of. Most commonly they are worried about the chances of contracting cancer or seek dietary advice. Increasingly they tell us they are in their 30's or 40's. In a recent poll on the forum, 84% of responses were from members younger than 55. The BOC online forum far outstrips all comparable national and international forums (e.g healthcentral and mdjunction) receiving up to a dozen posts a day.