Cystic Fibrosis is the Aoifa charity for 2010/2014
At the Chairmans Meeting on the 10th June 2010, Zoe a mother of three young children, two with Cystic Fibrosis spoke about life with children who have Cystic Fibrosis.
Cystic Fibrosis is Ireland's most common life-threatening genetically inherited disease. With more than 1100 CF Patients.
Ireland has the highest proportion of CF people in the world.
Approximately 1 in 19 people are carriers of the CF gene and where two carriers parent a child together, there is a 1 in 4 chance of the baby being born with Cystic Fibrosis.
CF affects the glands, damaging many organs including the lungs, the pancreas, the digestive tract and the reproductive system. The result is that people with CF are prone to constant chest infections and malnutrition.
Thirty or forty years ago, a baby born with Cystic Fibrosis was only likely to live for a few months, but now with the advances in research and treatment the majority survive well into adulthood.
With the welcome increase in life expectancy of people with CF over the years, the demand for the services of Cystic Fibrosis Ireland has also increased dramatically during this time.
This in turn, has resulted in the need for greater financial resources to be made available to the Association, in order that they can continue their very valuable work.
With little Government assistance, Cystic Fibrosis Ireland depends on fundraising to meet the rising shortfall.
We therefore encourage and ask you to support our Festival in Clonakilty in June as this is our major fundraising effort for CF Ireland this year. During 2010 to 2012 AOIFA members raised €56,353 for CF. We hope our efforts will help in improving the quality and length of life for the CF Patients in Ireland.
Go to Cystic Fibrosis Ireland website to learn more