Donor
Wristband Gift

Receive 1 wristband to help raise awareness for every $25 donation. Available while supplies last.

Click to donate NOW!



Ohio Support Group
June 5, 2013

We are stronger TOGETHER!
Register online to be part of the unified voice for TTP.
Receive the quarterly newsletter, updates and surveys.

Click to Register NOW.




ROADSHOW
Connecting the TTP Community.
Participate!
Click to Learn More.





A TTP, Thrombotic Thrombocytopenic Purpura, diagnosis is scary and complex. Many patients have never heard of this 3 letter acronym before, nor have they any idea as to its ramifications. Moreover, patients are told over and over that we just don't know:
  • why it happens
  • what may trigger a relapse from remission
  • why some patients relapse and others do not
  • what the long term prognosis is
  • how to ease treatment
  • how to cure T.T.P.

These questions remain unanswered because research is limited. TTP is an orphan disease that afflicts 3 in 1 million people. It is too rare to make it economical for pharmaceutical companies specialize research to find a cure. The purpose of Answering TTP is to help find answers to these questions by connecting patients and supporters. Together we can raise awareness and raise funds to support patients, treatment and research.

CLICK HERE to join the Answering TTP community today.

Answering TTP Foundation engages the TTP community to further common goals by:
  • providing patient support to alleviate the feeling of isolation that accompanies the diagnosis of a rare disorder
  • inspiring TTP patients and supporters to share their stories to help enrich the TTP community and garner public support for TTP
  • maintaining a consolidated information platform to disseminate information to the geographically dispersed community
  • providing a unified voice to ensure access to the safest and most effective treatments
  • developing TTP education materials  and distribution initiatives to educate the public and the medical community to speed diagnosis and save lives
  • supplying fundraising support and guidance to raise funds for effective TTP research to ultimately find a cure!
We need your help to improve the prognosis for TTP patients. Help us find the answer to TTP.



 
Watch the event video
CLICK HERE.

Our Goal

To assist in Answering TTP with a   cure!


Our Strategy

Provide an enduring framework to  connect the TTP community and provide tools for this community to support  each other, TTP education and TTP research.


Answering TTP

Together


Receive a tax receipt. Online donation is available.
Click Here.


In the News


Radio Interviews

Radio interview on CBC
in PEI as a result of the Rare Disease Day TTP Blood Drive.
Click on     http://www.cbc.ca/islandmorning/episodes/2013/02/25/blood-drive---pam-smith/


Radio interview on CJOB
in Winnipeg with Karen Black! Click on
http://www.cjob.com/other/audiovault.html. Date:February 20th Hour: 5pm
Scroll to 5:53pm


HAE Blog

Answering TTP Foundation is featured in the HAE blog (another rare disorder
patient group).
CLICK HERE