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August 23, 2011
Hello Everyone,
It has been more than a year since we wrote here last.
 
Today is when Aditya passed away 4 years back. The grief is still the same. Time has not healed anything.
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Loving memories we will never forget,
Sadly missed along life's way,
With silent thought and deep regret,
We think of ADITYA every day,
No longer in our life to share,
But in our hearts he's always there.
....................................................................
Aditi is growing up and is cute. She turned TWO on March 26. She is trying hard, with her right side being plegic and its challenges. She is making progress in her own way. She is trying to stand with support. She is saying few words. It is going to be a long journey with her.
Aditi Standing with Support
 
Thanx to everyone of you who have been and are praying for us. We apologise for not updating this page. But it breaks our heart everytime we come to this page. Not sure if we can continue to do this. Will try to create a facebook page to make it easy. Meanwhile please feel free to reach us directly at our email "kumarsang AT gmail DOT com" if you would like to communicate.
We are indebted to everyone who helped us in our journey with Aditya. Thanks once again.
 
March 26, 2010
 
Hello Everyone,
It has been nearly an year since we wrote to you all. Our apologies. No excuses.
Today is Aditi's first Birthday. Yes one year has just flown past with so much of challenges. By Aditya's grace we are in a better shape than where we started. Aditi has a lot of challenges ahead of her but we are determined to face it with her. She, like her brother, has surprised the doctors who felt that she wouldnt see her first B'day.
 
 As expected, she is developmentally far behind. She doesnt rollover on her own but she does it with support. She can sit upright if we make her sit. Since only her right brain is somewhat functional, her left arm and legs are functioning well. On the right she has difficuly moving her limbs. We are busy taking her through battery of therapies. Her social behaviour is good. She recognises people. She smiles and laughs which is a big gift from God for her condition. that takes lots of our pain away. She has started making various sounds. Her vision is somewhat impacted but not sure how much. But she can definitely see. Shas a lazy eye too. Her eating and growth are normal.
We really thank GOD and Aditya for supporting us and Aditi.
Hopefully she will be able to lead an independent life.
Please pray for her and Bless her on her BirthDay.
Still not overcome the pain of Aditya leaving us. Each day is still so tough. But we see HIM in Aditi. We dont know if it is rifht or wrong.
Life goes on..............................
 
May 2009

Welcome Aditi Sairaksha Kumar! Aditi came out crying loud and clear on March 26th. She is as adorable as her brother Aditya. But God really hit us hard all over again.... Aditi was born prematurely at 36 weeks by C section. 9th month ultrasound showed severe damage to her brain and hence the decision to bring her out. Her survival is a question and Doctors as usual have given us a very bleak picture. Even if she survives it will be with severe mental and physical diablilities. All this we found out only at the final leg of pregnancy... Yet to get over the shock that this child of ours(whom we thought was going  heal us in many ways) is also being lend by God for a short while. She was in the NeoNatal ICU for the first two week after her birth as she was having some feeding and breathing issues.  She had severe fluid accumulation in her brain and had to go thru a surgery to have a shunt placed in her tiny head for the fluid to drain out. But she turns out to be a little fighter just like her brother and came home to be with us. 

She is seven weeks old now and is feeding like any normal baby, but how long this will continue is not known. As usual we are back to 'One day at a time'.  Our faith has shaken so much that I do not want to ask any of you wellwishers to pray! That word PRAY all seems so absurd. Just hope that she doesnt suffer like Aditya did. Do not know why we are going thru this again and again and what God has in mind or what the future holds... But again its a very very tough road ahead.

Apologise for letting out not do great news.

Last week it was another May 16th. Aditya's Birthday. He would have been 7 years. He would have been so excited to see his little sister. Can't believe he is not here to see his little sister. Perhaps he didn't want to see her in this state.

 

December  2008 - Welcome back Aditya

Yes!Yes... I am in the family way. We are expecting our baby coming April... I know this is the best news that we could share in our life with all of you. It is unbelievable but it is real. We truly think Aditya is coming back to us. Had to go through no. of medical tests before we could share this wonderful news. Doctors have given the green signal  So far so good. We are looking fwd to seeing the little one with renewed 'HOPE and FAITH'...

All your blessings,prayers and well wishes have worked. This is God's way of giving us back that purpose, that we had lost and trying to search, to live on our life. I still do remember when I spoke to one of our very good friends and she mentioned the words 'Cautiously Optimistic', and since then have been sticking to these two words with lots of hope.  But one thing is sure, this time its for 'Keeps'.

Thank You Aditya, Thank you God and Thank you all  for continuing to support and pray for us, to make this happen.

 

 

May 16, 2008 - Happy Birthday Aditya

Aditya's birthday and all we have is memories from the past five birthdays.  Needless to say, it has been a tough day to pull through. We are in India currently.  Being with family here helped quite a bit. But all said and done, we had to battle each day of the minute.  We had been to CMC Vellore, where Aditya was being treated after relapse.  It was yet another heartbreaking experience to be back there, but each and everyone out there was so supportive and talked about what an amazing boy Aditya is(was?)!

 

They still think about him and his cheerful chatter,smile and his passion for cheese :) Ya the moment Doctor would walk in for rounds the first question he would ask is 'How are my counts today?' and if the answer from the Doc was 'good' then immediately the next question would be 'Then can I have a slice of cheese please?' Every single day this would be the routine....  We spent sometime in the playroom with the kids undergoing treatment currently. It was overwhelming.  All through we prayed to God to give strength to each and every child/person going through the treacherous chemotherapy and its side effects.

Happy birthday to our darling.... You are 6yrs old.  We are so proud of being called   'Aditya's parents'.

 

Febuary, 2008

It will be six months on 23rd....

First of all here's wishing each and everyone of you a very happy new year and pray for everybody's wellbeing. Am sorry for not having written in a long while, frankly I dont know what to write! But when I look at the guest book,  I realise that Aditya's page is alive and people are thinking and caring, we feel so overwhelmed...

 

Last year around the same time, Aditya was sufferring from severe Meningitis and needed a shunt to be place inside his little head... Just before leaving to the Operation Room, he called out to me and Kumar and said 'I love you both and you are the best'. He said this as they were taking him into the OR and we were totally shocked because we never thought our Aditya just 5yrs can talk these kind of words... Infact we even thought for a moment if it was parting words?... No but he came out OK after the shunt placement and gave us a big smile as he got out of sedation...  We cherish those words and we just cant control our tears when we remember it...

In these last six months not a day goes by without missing him, talking about him, remembering him and wishing again and again that this never ever ever happened...   Thanks to our family and friends for supporting us throughout...

Thanks once again for the support,we are amazed to see that so many of you continue to come to Aditya's webpage.

 

Nov 21, 2007

It will be three months on 23rd.... Also it is exactly a year since we came to Pittsburgh. The day we were leaving from Bombay Aditya was running a very high temprature... We called up his doctors in CMC, and they said not to cancel the travel and put him on mild antibiotics and Crocin(Tylenol)... We were so scared and prayed hard that nothing should go wrong during travel , poor boy didnt open his eyes due to the high fevers. After reaching New York he brightened up and was cheerful.  

 

I still remember we came with so much of hope that everything will be fine with our Angel, that we are in best of the medical facilities in the world, if God has brought us so far then nothing can go wrong etc etc... But now we realise, be it best of best of best!,nothing really matters, if this is what was to happen it will come what may!   Of course we have learnt this lesson of life a very hard way...

 

Kumar and me are still living by the day... It three months, but getting more and more tougher to live a life without Aditya, and something tells its not going to get better. Yesterday I came across a little notebook, it had Aditya's writing. Aditya loved to monitor his temprature and Blood Pressure readings. And he had written in this note all his temprature readings... His writing is so beautiful... All these are treasures for us now.

 

We thank each and everyone of you to continue to support and be with us even now... We have been visiting a lot of family and friends in the last three weeks and it is comforting and diverts our mind.

 

Oct 15, 2007

Its hard as days go by, just breakdown when we come across Aditya's favorite things... Its now we need more strength, especially when we realise he is not coming back...  

 

Here are a couple of pictures taken just a day before he passed away.. This was taken by one of the nurses, Kathy - We thank her so much, as this is so very precious to us...Like many of you have mentioned he taught us lots of lessons... esp. the meaning of life. Look at him putting up a smile even when he was lying down on a bed of needles... That is Aditya!!

 

Thank you all for your continued love and prayers, we truly appreciate everything more than you will ever know...

 

 

 

Oct 02, 2007

We are yet to get our internet connection. Hence really stuck with posting anything. We have some photographs of Adi to share. We 'll do it soon. Writing this thro a friend's connection. Here is our new address:

4010 Stonecliffe dr, Monroeville, PA 15146; Ph: 703-966-6478; 724-759-3422

Given below is a wonderful story sent to us by our friend Saily Joshi. Wanted to share with everyone. Will soon start writing.................................

The Brave Little Soul by John Alessi
Not too long ago in Heaven there was a little soul who took wonder in observing the world. She especially enjoyed the love she saw there and often expressed this joy with God. One day however, the little soul was sad, for on this day she saw suffering in the world. She approached God and sadly asked, "Why do bad things happen; why is there suffering in the world?"
God paused for a moment and replied, "Little soul, do not be sad, for the suffering you see unlocks the love in people's hearts." The little soul was confused. "What do you mean?" she asked. God replied, "Have you not noticed the goodness and love that is the offspring of that suffering? Look at how people come together, drop their differences and show their love and compassion for those who suffer. All their other motivations disappear and they become motivated by love alone."
The little soul began to understand and listened attentively as God continued. "The suffering soul unlocks the love in people's hearts much like the sun and the rain unlock the flower within the seed. I created everyone with endless love in their heart, but unfortunately most people keep it locked up and hardly share it with anyone. They are afraid of being hurt. But a suffering soul unlocks the love. I tell you this-it is the greatest miracle of all. Many souls are bravely chosen to go into the world and suffer-to unlock this love-to create this miracle-for the good of all humanity."
Just then the little soul got a wonderful idea and could hardly contain herself. With her wings fluttering, bouncing up and down, the little soul excitedly replied, "I am brave; let me go! I would like to go into the world and suffer so that I can unlock the goodness and love in people's hearts! I want to create this miracle!
God smiled and said, "You are a brave soul I know, and thus I will grant your request. But even though you are very brave you will not be able to do this alone. I have known since the beginning that you would ask for this and so I have carefully selected many souls to care for you on your journey. Those souls will help you create your miracle; however they will also share in your suffering. Two of these souls are most special and will care for you, help you and suffer along with you, far beyond the others. They have already chosen a name for you."
God and the brave little soul shared a smile, and then embraced. In parting, God said, "Do not forget little soul that I will be with you always. Although you have agreed to bear the pain, you will do so through my strength. And if the time should come when you feel that you have suffered enough, just say the word, think the thought, and you will be healed.
Thus at that moment the brave little soul was born into the world, and through her suffering and God's strength, she unlocked the goodness and love in people's hearts. For so many people dropped their differences and came together to show their love. Priorities became properly aligned. People gave from their hearts. Those that were always too busy found time. Many began spiritual journeys-some regained lost faith-many came back to God. Parents hugged their children tighter. Friends and family grew closer. Old friends got together and new friendships were made. Distant family reunited and every family spent more time together. Everyone prayed. Peace and love reigned. Lives were changed forever. It was good. The world was a better place. The miracle had happened. God was pleased.

 

Sep 22, 2007 
       Its a month already... Just cannot believe and accept this... The only solace is that Aditya is not suffering anymore from pain. He is happy in God's abode.

        We got back last Friday from India after a hectic time. But being with family and friends brought lots of consolation. We visited Aditya's school in Bangalore and the teachers didnt stop crying the whole time that we were there. Everybody remembers him so fresh and full of energy. We got lots of his school pictures.

        Kumar started his work since this Monday and we have moved to an apartment. Slowly trying to face the reality that Aditya is not with us. Every box that I unpack has his stuff, a toy, dress or his coloring book, his sticker collection, its all priceless now to us... It breaks my heart to see all this but then again I know that he is not in pain and try to console myself. Kumar when he drives,keeps hearing Aditya's instructions on driving (he loved,it feels so painful to write in past tense, would always tell his dad/or the driver the signal lights/turn on the indicators,to drive fast or slow!!)

        Though its one way OK to move to a new neighbourhood, away from the hospital location, but He is just everywhere... when I make dosa or Rasam, or spill something etc just everywhere... He was our strength our guide, if we fought so relentlessly it was just because he drove us to it... Now we have lost all of it, its becoming tough to make simple decisions these days.

         Thank you all is too small a word to show our gratitude... Each one of you out there has been/continue to be such a  support during our most difficult times. Aditya fought so hard because of all the positive energy coming his way. We are sure his soul is in peace now. He is happy and enjoying himself with all his friends up there, all of them Nirali,Piyush,Subash, Aditya and many more children are happy... My God what a crowd it must be there for God to handle, may be we should ask God to send them back to their respective parents, as healthy happy kids :)

         We intend to keep writing here, share lots of experience, pictures and other happy moments. So keep coming here. We feel you are all our family. Please do call us whenever you feel like. We will do so too. We havent seen most of you. Do call us and visit us if you happen to be in pittsburgh. It would be so nice to see the faces that have been supporting us so well.

Thank you all so very much.

 

August 31, 2007 

Sangeetha and Kumar will be in bangalore on Sep 5th and 6th and will be in chennai from 7th till 12th. They can be reached at 09341980611

 

August 30, 2007 

Sangeetha and Kumar reached Varanasi (INDIA) today. They will immerse Aditya's ashes in Holy Ganges tomorrow and complete other rituals. They plan to be there for 3 days. They will later be visiting Mumbai, Bangalore and Chennai before flying back to the US by mid September.

 

August 24, 2007

A Farewell to Aditya 

Report from Sangeetha's Aunt

On the 24th of August 2007, friends and family gathered at the Beinhauer Funeral Home in Pittsburgh, Pennsylvania for little Aditya’s last rites.  The family was allowed private visitation with Aditya from 8:30 to 9:00 am as he lay at rest.  A priest from the Sri Venkateswara Temple of Pittsburgh was called in to conduct the last rites, which commenced at 9 am.

 

After the private visitation, the congregation was allowed to enter.  The visitors comprised of close relatives, friends from out of town, Kumar’s coworkers, Sai devotees in the community who supported Sangeetha, Kumar, and Aditya throughout their time in Pittsburgh, Dr. Goyal, hospital staff, and several others whom Aditya has touched.    

 

Aditya looked very peaceful, as though he was in a deep sleep.  He was dressed in a new outfit – a Batman t-shirt, jeans and a green overshirt – and it was hard to believe that he wasn’t going to wake up and call out to his Amma. 

 

The eulogy was given by the aunt quoting a couple of lines from the Bhagavad Gita. , Aditya was a divine child, who had touched thousands of lives around the globe.  He had come to earth to give redemption to all these people so that they may wash off some of their karma by helping him.  Sangeetha and Kumar were his caretakers for 5 years, until he was returned back to God.  Aditya was a very old soul and returned to the Lord after his work on earth was done. 

 

Immediately after the eulogy, a music therapist from the hospital who used to come to sing for Aditya every day sang two personalized songs for him. It was a beautiful and touching moment.

 

He looked beautiful and peaceful; he appeared Godlike, a vision who had been blessed by puja. There was not a single dry eye in the room. 

 

Then came the most difficult part – the parents had to relinquish and say farewell to Aditya’s mortal body, after which he was cremated. Kumar told us that after the cremation, he had a feeling of peace, like he had surrendered Aditya to his Creator. 

 

We would like to give our deepest and most heartfelt thanks to each and every person who has contributed to Aditya’s cause in kind, prayers, good wishes, thoughts, encouragement, and support.  This global community has touched us in a way we will never forget.  We are forever grateful and feel blessed to have had this wonderful child in our lives, albeit for a brief length of time.

 

 August 23, 2007

ADITYA PASSED AWAY at 1.45 am today. It was peaceful while he was in sleep.

This is the best GOD had for HIM.  

  • August 21, 2007 

Aditya is very sleepy but gets up in between to drink water and juice. He insists on holding the cup himself but he is too weak even to hold a small cup of water and even before he can finish the water he dozes off again.. In the last 3 weeks he has lost nearly 3Kgs. He is now only 13 Kgs.

His Oxygen was weaned off further.  He is now on a nasal canular instead of the big oxygen mask that covered most of his face. He is able to maintain good saturation(>95%) with this. This should be a relief for him.

All other health issues remain the same. 

Thank you so much for all the prayers and wishes coming our way. 

  • August 16, 2007 

There is definitely something going on between Aditya and all of you praying out there. Every time we write about Aditya’s  health taking a dip, he turns around the next day. And this is what exactly happened this day too. He woke up this morning asking for water and milk!!! He is making Amma and Appa’s updates stupid… Its OK as long as he is fine J  And this has been consistently happening…  

All other things remain status quo… The fact that he is awake for 5 mins to drink something before getting sleepy again is enough for us now.

Thank you all for the healing thoughts and positive energy…
 
August 15, 2007
Its been three days since Aditya opened his eyes... We hope its due to the heavy sedation and not Leukemia, which is also a possibility it seems,where the body starts to slowly shut down. He tries to open his eyes when his name is  being called, but otherwise does not respond to anything.
 
Aditya had been drinking by mouth but now that has stopped too, as he is too sleepy to swallow. IV fluids cannot be given much as the fear of fluid building up again can cause issue. He has lost tremendous weight in the last one week... His liver values(Bilirubin) are on the higher side still. His Oxygen levels are doing good, but heart rates are steadily increasing. Poor heart is working overtime...
 
Its becoming more and more painful to see Aditya deteriorating day by day like this... If the current condition is due to sedation, he should start interacting once his body gets used to this dose of Morphine.
 
Thank you for your continued support and prayers...
 
 August 10, 2007

Aditya has been complaining of more pain in the last two days. Pain all over his body. Reason again is due to the Leukemia. Since nothing can be done on that front , the only way to keep him comfortable is to increase the pain medication, which only results in more sleep, with very less interaction with us. His liver has started taking a toll,leading to a condition like Jaundice,eyes are very yellow. But again nothing much can be done due to Leukemia. His oxgen levels are ok, but heart rates are up again. Desparately wish ,we could do something to help him out...

Thank you for the continued positive energy and healing thought.

August 7, 2007

Again very sleepy. A lot of drugs he is on can  make him very tired and drained out. Though it is good that he sleeps, he is awake for only a little while... But I guess sleep is the only way that the body compensates for the lost energy. Aditya has got attached to a child life specialist who has been singing to him for the past six months, whether we are in the clinc or when admitted. So yesterday when he woke up, he had asked for her. He was happy to see her and she sang his favourite songs. These little litttle episodes makes us happy,especially when he wants something. Oxygen level was brought down a bit to see if he is tolerating itwell, so far so good.

Other problems on hand, like fluid retention,higher heart rates, high liver values,lung infection is haunting us... Of course the biggest that is looming is his Cancer...  Well, we will take one step at a time. Like the Doctor mentioned yesterday, we will be guided by Aditya, his indications on discomfort will tell us how to proceed...

August 5, 2007

A lot sleepy today. But more alert and responsive when awake. A lot of friends and family visited in the last couple of days. Aditya was happy to see them. Has started drinking Milk from today.  Today the fluid retention was low and he doesnt look all that puffed up. His belly is still bloated but again better than what it has been in days... His heart rates and oxygen levels were OK.

Thank you all for the Positive engery and healing thoughts...

August 4, 2007

Same as yesterday. Some rocky times, with high heart rates. Had to get more oxygen and sedation. He is having a lot of fluid retention in his body so medicines are being given to get that out as and when the fluid builds up,which in turn has some side effects for which again medicines are being given. It is going crazy really, so many complications, everyday a new problem in his health.His condition is still critical but he is talking again,opening his eyes again and that is what is most important to us now, we have to live by the moment. He is thirsty wants more water and juice to drink...

Seeing your notes brought tears... There are so many of you praying for Aditya, so many... Thank you is too small a word to express our gratitute. Especially when every ounce of our strength, sanity is drained out, your healing and supporting messages have become our strength again. (We try reading aloud sitting beside him)...  

August 3, 2007
Yesterday night was rocky again but he settled down with more doses of sedation and oxygen... This morning he woke up and asked for water to drink. When the doctor asked him how he was doing, he said better inspite of being heavily sedated... I really dont know what difference he knows between better,fine, and not fine... But that is the word he used!

Thank you all for being with us through our most difficult times... 

August 2, 2007
Aditya is still holding up.....He is still the same but is responding a little bit to our voices and other stimulants. Not able to open his eyes. Please keep praying......We are hoping again....

August 1, 2007

We lost most of the ground we covered over last few days. Since this afternoon Aditya's condition became very critical.. His breathing became very laboured with intermittent gasps for breath inspite of the oxygen. Heart rates shot up again. As wished by Aditya we did not take him to the ICU and are trying to keep him calm with whatever is possible in the room... He is currently lying unconscious waiting for the inevitable....

We still request you all to keep praying...

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