Patient/Caregive Speakers

Speaker  

 Institution

 Topic

Ginger and Alex Irvine

Advocacy for Neuroacanthocytosis Patients 

History and Background of the Advocacy for Neuroacanthocytosis Patients

Jo Klein, PT Physical Therapist

University of Michigan Health System

Physical Therapy for NA

Karen Kluin, MS, CCC, BC-ANCDS
Speech-Language Pathologist and Clinical Assistant Professor, Neurology

University of Michigan Health System

Speech and Swallowing Evaluation and Intervention for NA

Andrew Anders
Reiki Master Teacher


Usui Reiki Ryoho - a Japanese relaxation/healing practice for care in body and mind

Adrian Danek, MD  Professor of Cognitive Neurology

Graduate School of Systemic Neurosciences, Ludwig Maximilian University of Munich

Medical Q&A

Ruth Walker, MD, PhD
Associate Professor, Neurology, Director, Movement Disorders Clinic

Mount Sinai School of Medicine

Medical Q&A

Ginger Irvine

Advocacy for Neuroacanthocytosis Patients 

Moving forward: Discussion of needs of the Advocacy for Neuroacanthocytosis Patients

Adrian Danek, MD

Graduate School of Systemic Neurosciences, Ludwig Maximilian University of Munich

Patient Registry


Comments