Welcome to pulmonaryfibrosisuk.org.uk markII! This site is here to help people with people affected by Pulmonary Fibrosis and those working to fight it find what's out there on the web. We would like to say a big thank you to everyone who has donate money to the British Lung Foundation through this site.
The Pulmonary Fibrosis Trust was established in 2012 to raise awareness of pulmonary fibrosis and to support patients with the condition in the UK. The site is concerned mainly with what the trust is doing to raise funds and how those funds are being used to help people with Pulmonary Fibrosis.
There are a number of Groups on facebook relating to Pulmonary Fibrosis which provide up to date info, a chance to meet others or just to tell your story. This provides a link to the Pulmonary Fibrosis UK group.
The European Lung Foundation (ELF) was founded by the European Respiratory Society (ERS); the world’s leading medical organisation for respiratory experts. The aim of the ELF is to bring together patients, the public and respiratory professionals to positively influence respiratory medicine.
Irish Lung Fibrosis Association. The primary aims of the Irish Lung Fibrosis Association are to provide a source of information and support to people with the condition and to provide funding for research and the development of new treatments for Lung Fibrosis.
Asbestos.com. We're here to help those who need to know how to battle this disease. Our website is loaded with information about treatment, and what we do best is collect information about mesothelioma and use it to help people and families affected by the disease.
Breath of Life Funds (from the BLF) are in essence a tribute fund set up to celebrate the life of an individual. They can remain open for as long as friends and family wish and anyone can donate to the fund.
The Pulmonary Fibrosis Foundation is a US organisation dedicated to finding a cure for and raising awareness of Pulmonary Fibrosis. The Foundation is also devoted to improving the quality of life for those afflicted with this illness.
Richard Dasent. A website developed by a great guy Richard Dasent. An IPF sufferer himself Richard has developed this site to help and bolster fellow sufferers. sadly Richard died on the 18th February 2010. His family want to carry on as many have found it useful, humorous, and at times comforting.
Breathing Matters is the new Centre for Respiratory Research fund which is part of the UCLH Charity. It has been set up to raise awareness and to work with patients to help find a cure for Interstitial Lung Diseases such as Pulmonary Fibrosis.
Donate. We have set up a Breath of Life Fund with the British Lung Foundation in memory of our family members Clive, Chris and Sue called the Jinks Family Fund. All the money we raise goes into this fund, which goes directly to research into pulmonary fibrosis. You can set up your own breath of life fund!
The Coalition for Pulmonary Fibrosis is a US organisation set up to support patients and caregivers through every step of their experience with PF — sharing resources, information and working to protect the rights of our patients.
Mesothelioma Guide is a comprehensive resource for family members and patients who have been exposed to asbestos. The website features up-to-date information about improving prognosis, life expectancy and many treatment options. Our Doctor Match program has been designed to connect patients with the best specialist for their specific diagnosis and geographic location. Lastly, our site features an online-community for patients to talk to real people, including caregivers and survivors.