Helpful Information

 


Click on the Organizations' Logo or Clipart to Go Directly to the Source

Disclaimer:  PUSD or the PTA Council does not necessarily endorse or sponsor the content of any written or electronic material displayed on this site. Parents and guardians are responsible for determining the potential merits of the information provided.

If you would like to provide feedback regarding these listings, please email Belle Musfeldt, Communications

Updated 5-24-19



Amazing Things Happen

An introduction to autism that aims to raise awareness among young non-autistic audiences, to stimulate understanding and acceptance in future generations. It is intended to be viewed, discussed and shared widely by anyone but especially teachers and parents.

Watch this video in other languages:  http://amazingthingshappen.tv/






https://alanhufoundation.org

The Alan Hu Foundation’s mission is to promote mental health, raise awareness and remove stigma surrounding psychiatric disorders, and support fundamental research for cures. The Alan Hu Foundation is a 501 (c) (3) tax-exempt non-profit organization.

Alan passed away due to his mental disorders. He was fifteen. Read more about Alan’s story.

The Alan Hu Foundation will carry out Alan’s wish to bring a better day to other people who suffer from horrible mental diseases.






https://www.bayareaparent.com/Special-Needs/

SPECIAL NEEDS & INCLUSIVENESS Articles:    Click here


TO READ THE MAGAZINE BELOW, CLICK ON THE IMAGE

https://www.bayareaparent.com/Special-Needs/







Decoding Dyslexia CA

Educate. Advocate. Legislate.


Decoding Dyslexia CA is a grassroots movement driven by California families, educators and professionals concerned with the limited access to educational interventions for dyslexia and other language-based learning disabilities within our public schools. We aim to raise dyslexia awareness, empower families to support their children, and inform policymakers on best practices to identify, remediate, and support students with dyslexia in CA public schools. 

The San Ramon Valley Council of PTAs' Special Needs Committee is a partner of Decoding Dyslexia CA.


 https://drive.google.com/file/d/1GrBR_CswkgDGBEMa3OCMVEvXu0amoTBU/view?usp=sharing








https://www.parentcenterhub.org

Your central “Hub” of information and products created for the network of 

Parent Centers serving families of children with disabilities

What you’ll find on the Parent Center Hub:

  • Family-friendly information and research-based materials on key topics for Parent Centers
  • Private workspaces for Parent Centers to exchange resources, discuss high-priority topics, and solve mutual challenges
  • Coordination of parent training efforts throughout the network
  • A twice-monthly e-newsletter with key topics, new resources, upcoming events, and materials to share with families
  • Materials from Parent Centers themselves
  • CPIR-produced databases specifically designed for Parent Center staff:


There are nearly 100 Parent Training and Information Centers (PTIs) and
Community Parent Resource Centers (CPRCs) in the US and Territories


• Working with families of infants, toddlers, children, and youth with disabilities, birth to 26
• Helping parents participate effectively in their children’s education and development
• Partnering with professionals and policy makers to improve outcomes for all children with disabilities





http://nationalautismassociation.org/

http://nationalautismassociation.org/





http://www.php.com

Phone (408) 727-5775

As a parent-directed, community-based organization, PHP's mission is to help children and adults with special needs receive the support and services they need to reach their full potential by providing information, training, and resources to build strong families and improve systems of care.

Established in 1976 as a nonprofit agency, Parents Helping Parents, meets the needs of one of our community's most vulnerable populations - individuals with any special need and their families. This includes children of all ages and all backgrounds who have a need for special services due to any special need, including but not limited to illness, cancer, accidents, birth defects, neurological conditions, premature birth, learning or physical disabilities, mental health issues, and attention deficit (hyperactivity) disorder, to name a few. Learn more about PHP's here

Resource
Resources from ABA agencies and adult daycare/day programs to residential care for adults/children/teens-young adults.
 
E-Learning Library for Special Needs Click Here 
The PHP E-Learning Library includes videos, podcasts, and e-packets on a wide variety of topics to help families caring for a loved one with special needs. We assembled them in one place to make it easier for you to find the resource you need, now. They cover topics like special education basics, how to request an assessment from your school district, IEP meeting preparation, and assistive technology. We also have videos on public benefits like SSI, IHSS, and more.

Support Groups & Workshops







The Complete List of Free Things and 

Grants for Kids with Special Needs

 
https://www.dontpayfull.com/blog/free-things-and-grants-for-kids-with-special-needs?fbclid=IwAR2Id1MEKZSNkGEqJe29gsovOnRytpexyd_zGAcKt_cLOPfNoIz7I9K_SyE








About SPARK
 

Today we simply don’t know enough about autism. SPARK—a landmark autism research project—aims to make important progress possible. SPARK stands for ‘Simons Foundation Powering Autism Research for Knowledge,’ and the mission is simple: we want to speed up research and advance our understanding of autism to help improve lives. If you or your child has a professional diagnosis of autism spectrum disorder, learn more about SPARK here.

WHY JOIN? 

As autism is a spectrum, researchers need many people with autism to participate in all types of research. Until now, only a small number of individuals and families affected by autism have ever participated in research. SPARK wants to invite the entire autism community to dramatically expand its participation.SPARK will provide researchers with medical and genetic information from tens of thousands of individuals and families affected by autism. These data will power important new research that aims to advance the understanding of autism and provide meaningful information and resources to participants.

For more information, Click Here.

Webinars
For upcoming and past webinarsClick Here.







https://www.autismspeaks.org

Autism Speaks is dedicated to promoting solutions, across the spectrum and throughout the lifespan, for the needs of individuals with autism and their families through advocacy and support; increasing understanding and acceptance of people with autism spectrum disorder; and advancing research into causes and better interventions for autism spectrum disorder and related conditions.
 
Autism Speaks enhances lives today and is accelerating a spectrum of solutions for tomorrow.






http://www.contracostaarc.org/html/care.html

Care Parent Network Is a one-stop family resource center serving families of children with disabilities and special health care needs. Its services include family support and mentoring, early start programs, resource information and workshops on IEP, community resources on health insurance and care services, child care and respite, financial assistance, links to disability-related services & educational agencies in Contra Costa County (e.g. Regional Center of the East Bay, California Children Services), along with links to state and national resources (e.g. Disability Rights California, California Department of Education, Children's Defense Fund).

https://drive.google.com/file/d/1O91t7HytzSYj6eW975xkuqqAwAuk2ykg/view?usp=sharing







http://www.autism-society.org/


The Autism Society of America has been improving the lives of all affected by autism for over 50 years and envisions a world where individuals and families living with autism are able to maximize their quality of life, are treated with the highest level of dignity, and live in a society in which their talents and skills are appreciated and valued. We provide advocacy, education, information and referral, support, and community at national, state and local levels through our strong nationwide network of Affiliates.

Founded in 1965 by Dr. Bernard Rimland, Dr. Ruth Sullivan and many other parents of children with autism, the Autism Society is the leading source of trusted and reliable information about autism. Through its national network, the Autism Society has spearheaded numerous pieces of federal, state and local legislation, including the 2006 Combating Autism Act, the first federal autism-specific law. The Autism Society’s website is one of the most visited websites on autism in the world and our on-line resource database, Autism Source™, and National Contact Center (800-3-AUTISM) provide information and service referrals to thousands of people each year.






https://dyslexiaida.org
The International Dyslexia Association (IDA) is committed to serving children and adults with dyslexia and all who struggle to read…because reading changes lives. This commitment does not end at the borders of the United States, it extends to a worldwide community—a global network of researchers, educators, individuals with dyslexia, and their families. 







http://www.dyslexia-ncbida.org


Raising awareness and providing resources.  As the oldest branch of IDA, NCBIDA has been providing research-based information on dyslexia to the greater San Francisco Bay Area and Northern California for more than 40 years. Their goals are: to increase awareness of dyslexia, disseminate information about dyslexia, and to encourage the use of research-based programs for teaching students with dyslexia. NCBIDA offers workshops for parents and teachers, a hands-on simulation called Experience Dyslexia®, teacher training scholarships and resources to increase awareness and support for those affected by this learning difference.






http://med.stanford.edu/espa.html

A joint program between Stanford Children’s Health and Children’s Health Council to 

provide supportive services at no cost to families after diagnosis

Services Provided:

-Sharing resources

-Helping families connect with providers

-Parent education

-Guidance in navigating the educational and health care systems

-Clinical Care Coordinator and Parent Education services are offered in both English and Spanish

650.723.ESPA (3772)

autismsupport@stanford.edu


Parent Education

Helping families get started with basic strategies to more effectively play with their children and elicit interaction

Clinical Care Coordinator

Helping families connect with clinical services in the community







https://edsource.org

HIGHLIGHTING STRATEGIES FOR STUDENT SUCCESS

Belief Statement
EdSource believes that access to a quality education is an important right of all children. We further believe that an informed, involved public is necessary to strengthen California’s schools for the benefit of the state’s children, its civic life and its economy.

Goals
EdSource works to engage Californians on key education challenges with the goal of enhancing learning success. It does so by providing timely, useful and accurate information to key education stakeholders and the larger public; advancing awareness of major education initiatives being implemented in California and nationally; and highlighting effective models and strategies intended to improve student outcomes, as well as identifying areas that are in need of repair or reform.






http://www.dsconnection.org 


A Bay Area Non-Profit Organization Passionate and Dedicated to Encouraging the Unlimited Potential in Children and Adults with Down syndrome Since 1998. The Down Syndrome Connection of the Bay Area consists of a group of caring individuals, educators, therapists and involved community members whose passion and commitment is to serve families who have members born with Down syndrome. We do this through education, advocacy, support groups for the entire family and developmental based classes for babies, children, teens and adults. Our goal is to enrich the child and adults lives through pre-academic, academic, language skills and social/behavioral interaction, ultimately preparing them for community integration as a valuable participant and contributor.

Down Syndrome Connection of the Bay Area
101-J Town and Country Drive
Danville, CA 94526
Monday-Friday 9:00 a.m.–5:00 p.m. 
Helpline:  925 362-8660



https://www.ncld.org

National Center for Learning Disabilities (NCLD) team envisions a society in which every individual possesses the academic, social and emotional skills needed to succeed in school, at work and in life. Learn more about our credo, programs, events, and more below. The mission of NCLD is to improve the lives of the 1 in 5 children and adults nationwide with learning and attention issues—by empowering parents and young adults, transforming schools and advocating for equal rights and opportunities. We’re working to create a society in which every individual possesses the academic, social and emotional skills needed to succeed in school, at work and in life. 

Understood  A comprehensive online resource that empowers parents of children with learning and attention issues through personalized support, daily access to experts and specially designed tools.

Friends of Quinn  An online community that offers information and support for young adults with learning differences.

Get Ready to READ! is designed to support educators, parents, and young children in the development of early literacy skills in the years before kindergarten. Intended for use with all children, the resources and information provided on this site promote skill-building, communication between adults, and ways to address concerns.

NCLD IDEA Parent Guide  A comprehensive guide to your rights and responsibilities under the Individuals with Disabilities Education Act (IDEA 2004)






http://www.specialeducationadvisor.com/

Special Education Advisor.com is a community of parents, educators, and special education service providers dedicated to helping families with special education needs children understand their special education rights and receive appropriate special education services. 

Recommended apps and product reviews:  Click Here.









San Francisco-based Parents Education Network (PEN) is a coalition of parents collaborating with educators, students and the community to empower and bring academic and life success to students with learning and attention differences. 
What we believe
  • The child suffers if the parent-school relationship is adversarial instead of collaborative.
  • Understanding learning and attention differences, as experienced in the context of the classroom and the home, is the key to a good partnership between the school, parents and students.
  • Parents can't teach educators; parents must teach other parents, and educators other educators.
  • A strength-based approach at school and home is most effective in helping students reach their full potential.

What we want to achieve
We aim to ignite an education revolution across the country that will acknowledge, appreciate and effectively teach all students, including those with learning and attention differences by:

  • Increasing awareness, knowledge, understanding and appreciation of the strengths and challenges facing students with learning and attention differences through education and collaboration of parents, students, teachers and the community.
  • Promoting a strength-based, research-driven approach that benefits all students, in the classroom and at home.
  • Empowering students with learning and attention differences to reach their full potential.

Bay Area Events    Click Here

Resource Library    Click Here 







http://chaddnorcal.org/

Welcome to CHADD of Northern California, your resource for helping you and your child learn what attention deficit hyperactivity disorder (AD/HD) is and what it isn’t. We will provide you with the tools and information that your child needs to fully develop his/her potential. It starts with getting the right diagnosis, finding the right treatment, getting help at school, and learning from others who have walked in your shoes. Let us help connect you with AD/HD professionals and resources and, together, we can chart a path for the healthy growth of your loved one and, in the process, make life a little easier. CHADDs Parent-to-Parent Family Workshop Series provide education information and support for families who are dealing with AD/HD and learning to navigate the challenges of AD/HD across the lifespan of the child. For a list of CHADDs calendar events, go to www.chaddnorcal.org/calendar.








https://www.supportforfamilies.org

Since 1982, Support for Families of Children with Disabilities has offered information, education, and parent-to-parent support free of charge to families and professionals of children with any kind of disability or special health care need in San Francisco. 











https://www.additudemag.com

ADDitude is the trusted resource for families and adults living with ADHD and related conditions and the professionals who work with them.

Since 1998, millions have trusted ADDitude to deliver expert advice and caring support, making us the leading media network for parents and adults living with attention-deficit disorder, and for professionals working in the field. We provide well-vetted expert guidance and in-the-trenches understanding to help you navigate the very real challenges that arise from ADHD and related mental health conditions. It remains our mission to be your most reliable advisor and ally, and a source of inspiration along your path to health and well-being.

In ADDitude, you’ll find practical solutions you can act on immediately, whether the challenge you’re facing is to:
  • determine whether you or a loved one has ADHD, learning disabilities, or another condition
  • research treatment options and find the right combination of medication and natural treatments to manage your or your child’s symptoms
  • secure 504 or IEP accommodations for your child at school
  • remove the isolation and stigma that still surround too many with the condition
  • create organizational systems that will help you keep track of your keys and get to work on time every day
  • distinguish symptoms of mood disorders, anxiety, learning disabilities, oppositional defiant disorder, and other mental health conditions from ADHD
  • connect with a community of parents and adults who understand the intense emotions and daily joys and headaches of living with ADHD








https://www.speechandlanguagekids.com/

Where Speech-Language Therapists Go for Answers


Free downloadable practical speech and language activities, resource and information that can be used to improve communication in your child or the students you work with.

https://www.speechandlanguagekids.com/