Our Mission

Our Mission Statement:
Offering hope to families with any child who has been diagnosed with Ohtahara Syndrome.  We strive to accomplish this through support, research, education, and awareness.

What this means for you:

If your child has been diagnosed with Ohtahara Syndrome we would like to help. We understand that there are varying degrees of severity regarding OS and that each child may react differently to treatment.  An OS diagnosis ranges from severe to even a candidate for surgery and although we understand these differences and realize that each case is different, we are working on helping your family, no matter the outcome.  If you have a diagnosis of Ohtahara Syndrome, we are offering our support, love, prayer, understanding, information, ideas, etc., to help you and your child.  Please contact us if you would like further information or take a look around our webpage for articles, downloads, web links, newsletters, and stories regarding Ohtahara Syndrome. 

Aarons Ohtahara is a 501 (c) (3) non profit organization. 
"We Are Not Without Hope!"


Families at the Aaron's Ohtahara Family Gathering and Conference in Omaha at the Omaha Henry Doorly Zoo