Ohtahara Stories


Read more about Ohtahara Syndrome and see how it has impacted these families and their children.  For more stories, follow our link below to the Ohtahara Syndrome Community Newsletter, where we feature a new child almost every month.  These stories have similarities; all have been diagnosed with Ohtahara Syndrome; but, you will also see many differences... from surgery candidacy to genetic mutations and severity.  Every child has shown us that they write their own story and we still don't know much about Ohtahara Syndrome, its causes, or effective treatment plans.  We are learning though and progress is being made with current research studies in place.  


                                                                                                                                                                        Alexis and Aaron


Harper, Aaron, and Conor

Newsletter link...   https://sites.google.com/a/ohtahara.org/ohtahara2/newsletter-archives