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World Ohtahara Syndrome Awareness Day - November 15

posted Oct 23, 2014, 9:58 PM by Aarons Ohtahara   [ updated Sep 27, 2016, 3:35 PM ]

Mark your calendars!!
Save the date!!
Share about Ohtahara Syndrome!!

A special thank you goes out to the families that participated in our survey, our board of directors, and our regional representatives for designating and recognizing November 15th as the first annual World Ohtahara Syndrome Awareness Day! This day is for remembering and honoring ALL of our children diagnosed with Ohtahara Syndrome, this day is for awareness.  Please join us in our awareness efforts by sharing with someone about Ohtahara Syndrome. Our children may not speak, but they can still have a voice! Be their advocate, be their voice!!

5 Ways You Can Help Be Part of World OS Day

  1. Share with others about Ohtahara Syndrome, how is has impacted your family and definitely share about your child!
  2. Use the hashtag #WorldOSday for social media posts and photos
  3. Share the below save the date or the save the date that has your child's name represented
  4. Wear purple
  5. Send in a proclamation to your state in order to have World Ohtahara Syndrome Awareness Day recognized in your state (see file attachment below)

Please see the attached files for a draft proclamation to recognize World Ohtahara Syndrome Awareness Day in your state, then let us know you are sending one in! Thank you!!

Aarons Ohtahara,
Oct 28, 2015, 3:55 PM
Aarons Ohtahara,
Oct 23, 2014, 10:38 PM